Oral Lichen Planus - my new dental treatment plan...
I am so frustrated with my current dentist. I am loosing teeth - six in the last year and another currently needs to be pulled - also have a partial they keep having to adjust and/or remake as the anchor teeth are now gone. I requested he refer me to "someone else" either another dentist or maxillofacial specialist, etc. I told him I was willing to travel. He referred me to a periodontist in a larger town 20 miles away. My first visit was yesterday and I'm hopeful. I'd previously been told that my gums and/or bones would not be supportive enough for implants or even dentures. This periodontist said one thing that he feels would work for me is a denture and use perhaps three implants to secure the the denture in place. He wants to first get my OLP in better condition and then do cleanings every 3 months. I'm to use Dexamethasone rinse four times a day. He also agreed that the one tooth that was questionable with the other dentist is loose and needs to come out. Luckily it is not an anchor tooth. Are there any of you that have been in this situation, i.e. have OLP, weak gums and bones that have had dentures with implants? Appreciate the replies.
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@jalice . @metta You both have asked about finding a doctor for OLP. You can try calling one of these autoimmune helper websites:
GARD. https://rarediseases.info.nih.gov/
NORD. https://rarediseases.org/
The URLs for these websites look almost identical but the organization are very different. You can call them and ask about their list of doctors. They are able to help you with a doctor in your area who is knowledgeable about OLP.
What is a good question that you want to ask of this doctor?
Thank you for this information. I did look hem up and got a lot of good information, but no one really in my area who specializes. My OLP is not flaring up inside my whole mouth right now, but there is always this white spot along the inside of my right cheek that is raised up, tender, and painful when eating anything sharp (like crackers), acidic or spicy. And a spot behind my left wisdom tooth that is also tender and painful when eating or brushing. Should I seek treatment now or wait until a flare up so the doc can see the full extent of the problem? Sounds like a silly question, but the ENT doctor I was referred to told me to wait to come in. Do ENT's know anything about OLP?
@metta I’m glad the information was helpful. Have you seen a dentist about your teeth? You should see your PCP and get a referral to a rheumatologist, who are the knowledgeable ones about OLP. But, I definitely see your dentist so you can get started on mouth care! Does this sound like a plan?
I am a year out from getting top teeth implants. The best thing I could have done. Even when I have lesions in my mouth, It is so much less painful. I am saving money for the bottom though. Mainly because it is so easy to cut, bruise or injure my gums. I hope you feel better.
@metta an oral pathologist is the one who helped me the most. I would suggest a referral to an oral pathologist.
I'll see if I can find one in my area. thank you.
Haven't seen a dentist yet. Need to do that. Rheumatologist? What kind of treatment did they advise?
Thank you, Jay. Take care.
No plan except to use fluocinide when it flares up. That was an endodontist to whom I was referred. I just live with red ness and soreness.
@jalice Have you tried Lyderm gel? That is what helps when I have flare ups. It really is a topical, but can be used off label inside the mouth.