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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)

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@fairlypatient37

I am not any type of anti vaxer. Got all my shots during childhood, from tetanus, mumps, measles, diphtheria, pox and whatever was available and offered during the 1960's and 1070's. Back then, there was not shot available against chicken pox or shingles. I did not have chicken pox as a child, but had it as a 20 year old. That was a bad experience, with terrible itches, fevers, misery. I got over that, but some scars from chicken pox are still visible 40 years later. So, when I got my flu shot, the doctor asked about whether I had a
refresher-shot for tetanus, and I said no, so he gave me that. Then he told me about the fact that the chicken pox virus and the shingles virus are similar, or one and the same, and that many people who had chickenpox will later in life get shingles. So, I also opted to get the shingles shot.
It's now about two weeks later, and I had specific side effects from the shingles shot:
1) The old scars from chicken pox started itching again, and there was a tiny red dot showing up in many of them. This is not listed as a possible side effect. Comments by experts are welcome!

2) On the arm which received the shingles shot, I can both see and feel an area of higher temperature, with prickles, itches and or a burning feeling at times, on and off. There are are also some red dots on the skin there, where there were none before.

The itching and burning sensation is showing up on a about 6 inch long and half inch wide area on the wrist, next to the tendons, on the right arm. The skin there has a different feel to it, and shows more little red dots. That burning sensation tends to creep up to the upper right arm, at the site of the shot, and then shows up further up, seemingly alongside or within nerves that go further up to the shoulder, and then towards the spine. The pain and burning is bearable, but it is worse than "when a foot falls asleep", and it impedes my work, because when you type and input data on a computer, your right hand is busy, and it gets interrupted if your whole arm feels like its burning, as with a sunburn. I should add that this is a distinctly different sensation from having tendonitis or fasciitis.
Also, the muscles in that arm appear to be more hard or tight. Is this nerve damage? Is it nerve inflammation? Thoughts from experts, anyone? Why is this side effect not even described in the medical literature?

3) Separate from that, I see now little bumps appearing in other areas of my body, which I have not had before. They are not red or inflamed, but feel as if some kind of lymph fluid is collecting underneath.

Overall, I do not know whether the combination of several shots all at once, (tetanus, mumps, measles, diphtheria, flu shot and shingles
shot) has something to do with this. I do not know whether taking Zoloft has something to do with these side effects. If I were to call my doctor, get an appointment, and ask all these questions, then not only will I be out $300.00, but the odds of the doctor saying "I don't know what's wrong here, and I can't fix it" are somewhere in the 95% to 100% range. I am not saying that doctors don't care, I merely see that too many times they do not know, and modern diagnostic equipment like MRI, Ultrasound, etc. does not improve their knowledge. It's sad to acknowledge that with many ailments modern western medicine has not progressed any further than 14th century medical knowledge. Faced with that, it is no wonder that people will try all sorts of herbal products, even if the effects of these are not provable, and even if some hurt or kill themselves with implausible or harmful ideas.

Something that gets me every time is the pharma ad statement: "If you are allergic to Bippetybappetiblubberymumabicatonesiladidamiladiphen, please call your doctor right away!".

The problem with that is
a) One cannot ever call a doctor right away!, and
b) one cannot possibly know whether one is allergic to an unknown new medicine! (Think, please!) and

c) that problem could be avoided, if the medical profession were DECENT enough to provide a small sample of the new medicine to the patient, so that the patient can bring it to the allergy clinic for tests to see whether a tiny amount causes an allergic reaction.

Item c) does sound like a reasonable request to me, but western medicine has an attitude problem, just like me. They might care, but maybe not enough.

As a result, I will not take the second shingles shot. I will of course take the Covid-19 shot, as soon as I am old or rich enough, because
it's the right thing to do, even if it makes me sick or kills me. Being dead, I will try to join the Greek God Zeus up in the clouds, and amuse myself with throwing thunderous lightning bolts onto the medical/pharmaceutical industrial complex. I am sorry that I started out serious and fact-based, but in due course I got off the rails, off a tangent, slightly unprofessional.

Legal disclaimer: If any part of this writing is considered illegal, wrongheaded or stupid, you are free to take the offensive parts out,
and leave the remaining sentiment intact. Thank You!

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Replies to "I am not any type of anti vaxer. Got all my shots during childhood, from tetanus,..."

Lol! I don’t think you’re comments will offend anyone here- this is a sympathetic group that just wants answers to this frustrating condition. Your post had me smiling throughout! I am also not opposed to vaccination as a rule and am looking forward to the COVID shots. I don’t know if I would not have got the Shingrix even knowing it could flare GD-shingles always seemed even worse. I think it would be best if we had more information upon which to base our choices but I agree that the medical profession doesn’t always have it to give. I mean the body is a complicated machine to be sure! I think I will just try to avoid putting as much non-food on or into my body as possible and keep drinking cilantro smoothies;-)

A wonderful post. You certainly are transparent. I hope that you don't suffer any more from the second shot. I am waiting for my GD to go into remission after 1 1/2 years. Cilantro smoothies with Lysine every day. My situation is not terrible. My out break stays in one or two places on my torso with on and off intensity. Generally they effect me only in the morning and at night. I feel fortunate in that respect. Just keep reading this site. More information here than any doctors office.