1. < Autoimmune Diseases

Nighttime Dry Mouth

Posted by kacey1 @kacey1, Oct 14 3:15pm

I'm a 79-year-old female with idiopathic dry mouth that has become progressively worse in the past two years. I go to bed at 11pm and will wake up every hour with dry mouth. When I wake up, I'll use either Act gum, sprays, water, or lozenges. By 5am, my mouth is so dry I have to get up and eat breakfast.
Tests for autoimmune diseases have been negative. Taking Pilocarpine gave me a headache.
Had anyone had success with products that work during the night?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

shelleyW | @shelleyw | Oct 16 12:12am
In reply to @kacey1 "Would love to try it. Where do you buy coconut oil? Most of the coconut oil..." + (show)
@kacey1

Would love to try it. Where do you buy coconut oil? Most of the coconut oil on the internet seems to be solid like shortening. The one liquid coconut oil was 25% coconut and 75% safflower.

Jump to this post

kacey1,
Coconut Oil can be solid in cold or liquid in the warm. It's ok for it to go back and forth between forms. It is also in oil gels. You could try to gels first, poke a hole in it, put a few drops in your mouth, see how you like it. ShelleyW

REPLY
frances007 | @frances007 | Oct 16 8:27am
In reply to @kacey1 "Would love to try it. Where do you buy coconut oil? Most of the coconut oil..." + (show)
@kacey1

Would love to try it. Where do you buy coconut oil? Most of the coconut oil on the internet seems to be solid like shortening. The one liquid coconut oil was 25% coconut and 75% safflower.

Jump to this post

in reply to @kacey1 I bought a can of liquid coconut oil at Walmart. I mix a small amount, maybe 1/8 cup with equal amount of water in a small glass/cup etc. Stir well to mix, then rinse after brushing your teeth. I did not believe it at first, but then met a young man at the eye glass shop, who said he did the same thing, having found out about this online, of course. I wanted his teeth, if you get my drift. But the mixture does work well. The oil is a tad expensive, but will last a long time, and I use the same oil for cooking etc., so I am not out a lot of money. Best of luck

REPLY
1 reply
frances007 | @frances007 | Oct 16 8:29am

My oil is called La Tourangelle Organic Suncoco Oil, and it is in a 25.4 ounce can. You are correct that it contains sunflower oil and that is just fine per my dentist. I think I paid about $10 or so for this at Walmart.....

REPLY
jeanjanx2 | @jeanjanx2 | Oct 16 9:34am
In reply to @shelleyw "kacey1, Dry mouth is such a big crummy thing. People who don't have it, really can't..." + (show)
@shelleyw

kacey1,
Dry mouth is such a big crummy thing. People who don't have it, really can't understand how it could be so bad. I get to points, when I simply must not speak or breathe through my mouth. I have pSS- primary Sjögren's syndrome, but just because you don't have a formal diagnosis doesn't make your mouth moist. Pilocarpine and another one are useless to me. I literally carry ice water everywhere, even the bathroom, with me. Ice Water is only a quick fix to the next step. I use MouthCote spray, it causes the least nausea. There are electrolytes in powder form, in tubes. Costco carries Liquid IV, several flavors, with sugar and now without sugar. I use only 1/4-1/3 of the packet, it is too strong for me. My favorite sugar free is white peach, the green grape one is gross .
I keep sugar free peppermint gum everywhere. I can chew it, then stick it to a tooth and chew when needed. I brush my teeth with prescription fluoride, be sure to read the instructions, don't leave it on your tongue, cheeks, etc, overnight, it does not feel good in the morning. I have super cheap children's mouth guards, that you customize with warm-hot water. I keep cough drops (like Halls) and drops, like cherry ones that really don't help my coughing. I've even tried a thin layer of Vaseline on my teeth, just before getting into bed. It is only a little help, but it's not any help if I talk after putting it on. I keep my lips all Goode up, Vaseline, balm, etc etc. Sipping on 7-up helps a lot, but it's not good for teeth or weight. Good luck with finding something that works for you. ShelleyW

Jump to this post

Perrier sparking water helps my dry mouth (feels wetter than water)and calms the stomach upset. also candy ginger from Trader Joe's

REPLY
1 reply
harley22 | @harley22 | Oct 16 1:08pm

What’s the candy Ginger look like,is it hard?

REPLY
betty41 | @betty41 | Oct 16 1:15pm

I have found that a stick of Extra Peppermint (sugar free) chewing gum wrapped around 1 ximelts and put between my teeth and gum works most nights. Do Not chew. If I just use ximelts, it irritates my cheek. I hope it works for you!

REPLY
betty41 | @betty41 | Oct 16 1:24pm
In reply to @dloos "Xylimelts help me. Biotin disappears too fast, and really doesn’t get me through the night. Usually..." + (show)
@dloos

Xylimelts help me. Biotin disappears too fast, and really doesn’t get me through the night. Usually I still have a bit of Xylimelt left in my mouth in the morning. There is a product called Chin Up that keeps the mouth closed through the night. I’ve been considering ordering that. My doctor suggested cotton tape, but I have not tried that either.
My mouth is ok during the day, so it must have to do with open mouth sleeping for me. I have been tested for Sjogrens three times and it’s always negative.
I have dry eyes and very dry skin too.
My dry eyes are a problem because it prevents wearing contacts and my eyes are often sore with or without contacts.

Jump to this post

Have you tried Refresh Digital PF eye drops or Refresh Celluvisc PF eye gel?

REPLY
1 reply
dloos | @dloos | Oct 16 1:27pm
In reply to @betty41 "Have you tried Refresh Digital PF eye drops or Refresh Celluvisc PF eye gel?" + (show)
@betty41

Have you tried Refresh Digital PF eye drops or Refresh Celluvisc PF eye gel?

Jump to this post

No. I’ll look for those. Thanks for the suggestion.

REPLY
ksdm | @ksdm | Oct 16 6:22pm

Oracoat Xylimelts, works all night.

REPLY
frances007 | @frances007 | Oct 16 7:38pm

The candy has too much sugar, if you are worried about such things. The oil is safer and is a game changer. Look it up online. Please

REPLY
View MoreView Less
Please sign in or register to post a reply.