Hi Vickie, (@marlysmae) I haven’t found similar postings in the forum with your specific mutation. Sometimes the mutations simply aren’t listed. Your mutation is somewhat rare as you mentioned in a previous post. It put you in a higher risk of your MDS progressing to AML, which it did.
So your team of doctors at Mayo will now focus on getting that pesky trouble-maker under control!

The low neutrophil count is unfortunate so hopefully once that starts to climb again, you’ll be set to go for the transplant! Sounds like that’s the only obstacle right now.
Congratulations with two potential donors, that’s really encouraging news.

The goal will ultimately be to get you into remission and see an upswing in your neutrophils so that you can get on with the transplant. Do you know what new treatment you’ll be receiving in the hospital over your course of 10 days?

Vickie, from my pretty extensive experience at Mayo-Rochester, you couldn’t be in better hands! I was just there last week for a followup and amazed all over again with my outstanding care, even 5+ years post transplant. So while I know these little hiccups you’re going through are frustrating and can be discouraging at times, don’t lose the faith or hope in a positive outcome! Your Doctors and their teams have your back! And so do I…along with all of us in this support group who have shared similar, yet different BMT stories.
Please keep me updated along the way. And best wishes for successful new treatment! Hugs.