Pudendal Nerve Entrapment/Neuropathy/Damage

How did you come to have this condition? I have been trying for more than eight years to find out why, when I sit, it feels like sitting on two large stones. Even after numerous treatments that relieved most of my other pain, this feeling has never, ever, subsided. It is a result of falling on my lower back and buttocks quite hard. A band of BLACK (not black and blue) developed across my lower back.
I have thought it might be helpful to have an ultrasound on my buttocks to see if there is anything present that might explain the constant, terrible pain. Appreciate you thoughts. Hope you are able to find some kind of relief.

I hear you loud and clear. If one has not experienced severe, chonic pain. it is difficult to imagine it. Day after day, pain level 7-9. Treatments are just not helpful. We who are in such a state will grasp at almost anything that promises some relief. Praying for your continued well-being.

Well, I have bilateral pain. It used to be more on one side really bad and the other side kind of bad so the first time I had ablation I did it on the bad side and I was blown away by the results. I think it lasted for a year and a half but when the pain came back, it was maybe 1/8 of what the original pain was. So then I got bilateral to both pudendal nerves on both sides. I love that because that’s like 100% relief that worked I think for a couple years and now I have some pain coming back nothing like the old days but I’m going to go in for that in a few months. I would really make sure that they are going to sedate you and have that camera so they can see the nerve and everything really up close because it does take precision. They basically have to burn the nerve. if your surgeon hasn’t done it before, I think I could probably get the notes on how it was effectively done for me and somehow send it to you because the doctors really need to learn this! I mean my gosh what is it? $1500 to have it done? That’s nothing compared to the goose chase of trying to find solutions and for years, I was on narcotics, which was terrible. I don’t take any pain medicine now anyway let me know if your doctor has experienced with this or if you would like any of the notes. My doctor took beautiful notes on what degree and direction he did the nerve and from what angle and he left them in my files. The new doctor can follow it exactly hoping to get the exact outcome. A lot of nerve he had retiring! But you know he had stories of like one woman that had a terrible horrible tickling sensation that would drive her nuts day in and day out and he treated her with radio frequency ablation. She couldn’t even work before he treated her. It’s very effective. I also learned over the years that different fabrics, especially scratchy ones would set it off and almost everything has to be a thin, smooth stretchy nylon type of fabric. I learned different positions. I simply could not sit in for long. It’s a bunch of things you learn along the way, but when they disable that nerve, it’s amazing relief.

I think that sounds all very extreme. Radio frequency ablation is not that long lasting and it simply stuns the nerve I found that’s plenty of pain relief and these other things are so invasive. It sounds horrible to me. I would never put an implant in my body there are so many things that can go wrong. The reason it’s perhaps not more popular is they don’t really make a lot of money out of it. It’s a $1500 procedure that is an outpatient where they just put you under a little bit and then you walk away in a couple of hours. I had great results with something that was safer and not so drastic. Still in the pain comes back. It’s nothing like the original pain. It’s like maybe an eighth of that. I found my doctor through making an appointment at Mayo. They could point me to someone that was trained in radio frequency ablation that was right in my town that practiced in pain management of nerves. They do warn you of complications that sound extreme. But my pain was so bad I couldn’t keep living living that way.

Definitely, I am looking forward to it!

I will pray that you even get half the results I did felt truly miraculous. Incidentally, I got my pudendal problem from a long bicycle ride the pain came on quite suddenly and I should’ve just said I’m not going anymore and got off my bike but like a fool I went on an incredible Payne And it never went away just kept increasing

I'm so happy you got relief from your pain. That's encouraging. Thank you for your prayers!

I hope you find a doctor that will do it. Good luck!

How did they determine that it was this pudental thing. I've had ablations on my L5-S1 nerves, which never really helped. Did it show up on MRI? Appreciate any info and help you can give me.

My son is dealing with a damaged nerve from surgery 15 years ago. Has been through all of the things and his last appointment at the Mayo did not leave him with a very positive outcome. He saw the best dr. that Mayo has. I will forward this info to him and see if he can convey it to his doctor. I pray it works as he is so frustrated. Thank you for this little bit of hope!