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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@blondie65

I also started on 1,000 mg per day in February of this year. I have really bad aches and pains. My legs are the worst. It is also worse at night. I haven’t said anything to my Oncologist but I will at my next appointment.

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Replies to "I also started on 1,000 mg per day in February of this year. I have really..."
jola13 | @jola13 | Oct 18 10:30am

I was diagnosed back in May 2023 and am on 500 M-T and 1000 F-S-S, my platelets have come down but I am also suffering a great deal from fatigue and shooting pains, bad aches in joints especially at rest and at night. It's all very tiresome.

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sdduan | @sdduan | Oct 18 11:17pm

I also had side effects of fatigue, itchy skin and much longer recovery time after a work out. Any one tried Pegasys interferon? I heard some benefits with that treatment.

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