← Return to Grover's Disease: What works to help find relief?

Discussion

Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

Comment receiving replies
@gardeningjunkie

I agree with you, you have more going on than GD. I have 3 forms of eczema including GD. Seems like you have had many tests. You mentioned patch testing. Was that the 5 Day Extended Patch Test and if so how many substances were checked? What type of blood test? What did it check for. My Medicare wouldn't cover my blood test (they did the Patch Test) so had to pay out of pocket $600 and that test showed allergies to 5 or 6 metals with the most severe aluminum and nickle. It didn't even test for mercury.

Has anyone suggested you have Atopic Dermatitis, so many of your symtoms sound like others with Atopic have. I have or had 3 forms of eczema and Atopic is not one. Maybe you could start a discussion asking for those with Atopic to share there symtoms with you. Dupixent seems to be the miracle drug for them.

I have been to many derms and an allegist over the years and I learn nothing from some, but have learned much from others. My suggestion is to keep searching for a good doctor. Perhaps you can mention your area in a discussion and ask others if they know of a dermatologist who is knowledgeable about eczema. So many today just want to sell face rejuvination where the big money is.

I'm glad your reaching out on this site, keep it up as I know first had blogging has provided me insight I never got from doctors.

Jump to this post


Replies to "I agree with you, you have more going on than GD. I have 3 forms of..."

Wow, the pictures of atopic dermatitis do look like part of what I have! Although it's described it as mostly affecting young people, which I'm not; but thanks for the advice on all counts.