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Grover's Disease: What works to help find relief?Skin Health | Last Active: May 28 9:12am | Replies (1754)
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Replies to "This is cynical, but I believe the dermatologists I go to are uninterested in our home..."
Unfortunately, many doctors in this country, have taken on the persona of gods and are often arrogant about issues that don't concern them, or diseases they are somewhat unfamiliar with. I was seeing another derm for a separate issue. After several prescriptions that didn't work, he prescribed Restelin (?) at $300 a pop. When that didn't work, he said I just needed more of it. That's when I went to a third derm who took one look at it and gave me creams that immediately eliminated the problem. My pcp Knows nothing about GD, but at least he listens to me and did suggest that I see an allergist to cover all bases. The allergst was fascinated by the cilantro smoothies. In the end, we appear to face this thing on our own to a great degree, hoping that someday someone in the medical field is empathetic enough to take the disease seriously.
My GD was diagnosed remotely by dermatologist. My GP is always interested in my solutions to any problems which I or my husband have. She always writes down to look up. I haven't solved my GD yet, but to date, clove oil has kept it at bay and kept me functional. I still have to use 3 x day which is discouraging. I tried the Gold Bond Extra Strength powder today and was quite miserable in short order. I use extra strength Bengay for extreme itch relief. (Only need once in awhile now.) It has 10% menthol, 4% camphor and 30% methyl salicylate (relative of aspirin) the Gold Bond powder lists .8% menthol as well as zinc oxide, acacia Senegal gum and Eucalyptol, as well as methyl salicylate (doesn't say how much of the latter ingredients.) The Bengay gives me excellent temporary (hours) itch relief, but no effect on the rash. I prefer an MD who admits he/she doesn't know as opposed to giving advice that it misguided and throwing medication at a condition like throwing spaghetti on the ceiling to see if it sticks. Still waiting for my Far Infrared Sauna to arrive. I was impressed by the derm who referred his patient to this site. You are all life savers. Having worked as a physical therapist for most of my life, I have found that many doctors don't diagnose problems they can't fix, so it's a help to have a diagnosis of Grover's Disease if only to get to this site.