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CKD stage 3 diet

Posted by ellerbracke @ellerbracke, Apr 22 7:20am

Hello! My husband was diagnosed with CKD stage 3 about 6 weeks ago. I have lists of sodium and potassium values for most common foods, also got some renal diet cookbooks from the library, as well as from Amazon, and do a lot of checking out recipes online.
I tried to find a renal dietician, but there isn't one. Physician(s) nor hospital outpatient services have anyone to recommend, either. Of course, once you progress to the dialysis stage, there's a personal dietician available. But not before, at least here.
So: muddling through. Most, if not all recipes I''ve seen are heavy on boiling stuff, especially vegetables. I get that for carrots, beans, etc., but I've yet to find a reason why I shouldn't roast them in the oven, with olive oil, garlic, etc. Does the cooking method really make a difference?

Also: almost every recipe for CKD diet is super low in calories. Great for someone overweight, but with a BMI of 21.6 my husband does not need to lose weight. But instead of bulking up with healthy vegetables I'm stuck with increasing carbs (rice, pasta), since vegetables contain quite a lot of potassium.

Lastly: leaching potassium out of potatoes: online recommendation is small pieces, lots of warm water, rinse and replace frequently, room temperature. Specially bought cook book by renal dietician says cold water, fridge, overnight (which internet says is the least effective method). Any comment? This is for potatoes destined to be roasted, not mashed.

Sorry to carry on, but there's so much conflicting information going on. Perhaps someone who has dealt with this for a while has some hints or advice.

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

kdalda75 | @kndaustin71 | Oct 4 9:00pm
In reply to @lizzabeth "Thank you. I am glad I did my research and refused the med. I did not..." + (show)
@lizzabeth

Thank you. I am glad I did my research and refused the med. I did not do that with Reclast and I will never be the same as well as losing 6 months of my life from severe side affects.

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Just lost about 8 months from side effects of Eliquis! Horrible migraines, vertigo, dizzy spells up to 3-4 times a day! Gotta do the research. NIH website for research! Drugs.com for medication as they pull data from 3 huge data bases!

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windyshores | @windyshores | Oct 5 5:12am

@kndaustin71 and @lizzabeth I also have kidney disease (eGFR 36-41) and after doing Tymlos and 4 months of Evenity, did Reclast but at a 20% dose, with one hour IV hydration and infusion of the 1mg over a whole hour. Second time the IV hydration diluted the Reclast and infusion was one hour. These measures protected my kidneys.

I have 7 spinal fractures which are painful, permanently, and disabling. I will tolerate quite a few side effects to improve my bones. Tymlos took me from severe to borderline. I am sensitive to meds and got onto it because the injection pen has adjustable dosing. I started low and moved up slowly to get my body to adjust. I never took full dose and stopped at 7/8 of the full dose but still had 20% gain in spine and 9% gain in hip. I hope you might consider Tymlos! I an "locking in" with low dose Reclast but not continuing past two 1 mg infusions.

Many posters on Connect are doing Evenity without significant side effects. If you read the actual studies on cardiovascular effects, they are less concerning. For instance there was no difference with placebo and small difference with alendronate possibly because alendronate is protective. Studies are FRAME and ARCH.

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bb76 | @bb76 | Oct 11 10:57am
In reply to @lbrockme "What a wonderful support you are ! I know this can seem very stressful and overwhelming..." + (show)
@lbrockme

What a wonderful support you are ! I know this can seem very stressful and overwhelming at times.
I've lived with CKD for 5 years. While I certainly oay attention and watch what I eat, I have learned to not focus to much on it, as well. I learned it was more about keeping hydration good , not overdoing sodium,
no sodas and limitng high oxalate foods for me like spinach , or highly processed food which have a lot of everything and chemicals, preservatives in them, etc. But it wasn't eliminating them at this point, it was really a focus on moderation. So having a potato once or twice a week was OK but not everyday. I eat red meat occasionally,
have more chicken, tuna etc. The very strict diets are for higher levels of ckd where the kidney function is very poor . Our bodies have reduced kidney function as we age just naturally, but we still need some of the nutrients in the foods. Unless of course your dr has identified high levels in testing that are requiring a reduction of a specific one. Has your doctor indication specific high levels? I have CzjD but my levels are stable.
The biggest focus was no ibuprofen type meds and keep hydration with water .
I appreciate your support anddedication to create healthy meals. I hope you can find a balance you are both comfortable with.

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New here and trying to find someplace to answer a question on Magnesium. I am using a cream for my neuropathy called Mama bear it contains Magnesium Cloride. I asked my doctor if i could use it. He said yes but find out how much Magnesium is in it. I have asked the company but haven;t gotten an answer. I just started it yesterday. My Magnesium count is good per the doctor. This cream is absorbed into the skin. Will it cause me to get too much magnesium in my system? I also just started on Farxiga as I am ckd3 with a GRF of 35. Since i can't get an answer from the company can anyone help...I need to try it a week to see if it will help. Used it 2x yesterday and i did see a little relief.

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2 replies
windyshores | @windyshores | Oct 11 11:31am
In reply to @bb76 "New here and trying to find someplace to answer a question on Magnesium. I am using..." + (show)
@bb76

New here and trying to find someplace to answer a question on Magnesium. I am using a cream for my neuropathy called Mama bear it contains Magnesium Cloride. I asked my doctor if i could use it. He said yes but find out how much Magnesium is in it. I have asked the company but haven;t gotten an answer. I just started it yesterday. My Magnesium count is good per the doctor. This cream is absorbed into the skin. Will it cause me to get too much magnesium in my system? I also just started on Farxiga as I am ckd3 with a GRF of 35. Since i can't get an answer from the company can anyone help...I need to try it a week to see if it will help. Used it 2x yesterday and i did see a little relief.

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@bb76 are you taking magnesium supplements? I take magnesium orally for my heart- 300-600mg/day. I don't use Epsom salts!

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bb76 | @bb76 | Oct 11 11:51am

Oh wow...I do use about a cup of epson salts a 3 times a week to soak my foot. but the Magnesium I am tallking about comes in a cream for my foot. I can't get an answer to that question from the company...they claim all the ingredients are safe. The magnesium in it is magnesium cloride.

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1 reply
windyshores | @windyshores | Oct 11 11:56am
In reply to @bb76 "Oh wow...I do use about a cup of epson salts a 3 times a week to..." + (show)
@bb76

Oh wow...I do use about a cup of epson salts a 3 times a week to soak my foot. but the Magnesium I am tallking about comes in a cream for my foot. I can't get an answer to that question from the company...they claim all the ingredients are safe. The magnesium in it is magnesium cloride.

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I would be more concerned about Epson salts 🙂 I mean if you take supplements, soak in Epsom salts (Magnesium) and use a topical mayyybbeee it could add up but it seems like a cream for your foot would be fine. If you are nervous, make sure you have calcium too- I was told. Would a nurse at your doctor's office or a pharmacist be reassuring? We are lay people here and I am only sharing my experience.

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vlbondon | @vlbondon | Oct 11 3:54pm
In reply to @bb76 "New here and trying to find someplace to answer a question on Magnesium. I am using..." + (show)
@bb76

New here and trying to find someplace to answer a question on Magnesium. I am using a cream for my neuropathy called Mama bear it contains Magnesium Cloride. I asked my doctor if i could use it. He said yes but find out how much Magnesium is in it. I have asked the company but haven;t gotten an answer. I just started it yesterday. My Magnesium count is good per the doctor. This cream is absorbed into the skin. Will it cause me to get too much magnesium in my system? I also just started on Farxiga as I am ckd3 with a GRF of 35. Since i can't get an answer from the company can anyone help...I need to try it a week to see if it will help. Used it 2x yesterday and i did see a little relief.

Jump to this post

If it is important to the doctor and his rec's, you must tell the doctor you can't find the info and ask that he do that. He is the expert. You are in no shape to be the detective searching for answers, if it works and seems to help your symptoms, just take it till Dr says not to, and tell him you plan to do that. Another thing, nurses often know this type info better than doctors, and for sure a pharmacist will; I'd ask the pharmacist today !!! Good luck.

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