You are lucky the steroid is helping you as I found nothing really made any noticeable difference until I tried drinking a daily cilantro smoothie. That subject is covered in the posts I mentioned. From all I have read it helps about 50% of us. Cilantro is a heavy metal detox and heavy metals are tied to Grover's and Parkinson's (my brother has Parkinson's). They say GD is not heredity or contagious but one of my sisters also has GD.
I am obsessive about being outdoors and never totally gave going outside even in summer when my breakouts were bad. What I did was try to get outside by 6:00 am and in by 10:00 am. I did find I would need to give myself a day off and stay inside every few days. Heat, sweat and friction are triggers for most but I have also started a breakout in January so for me the rules often don't apply.
Once inside the bra comes off in fact all underwear does(can't stand anything around the waist) and I wear old lady 100% cotton house dresses inside. Never ever thought I would dress like this, yet when symptomatic like you mentioned our skin hurts all the time and tight clothing really hurts.
My symptoms never totally go away. Our skin is permanently changed, our collagen has separated and our cellular structure is not tight anymore. I always have a few scabs or small bumps especially along my lower spine. I got excited thinking they had all fallen off the other day but they had just sloughed off and are back in the same places. Maybe only 10. When broken out I can have hundreds and maybe a thousand. If I press my skin on my upper back I can feel little bumps under the skin. I know they are just waiting, even though they don't itch now. Although I have had this now for at least 5 years be hopeful in that the 1st breakout is usually the longest and more excruciating. My subsequent breakouts normally lasted about 5- 6 months until I started with the cilantro.
Because of cilantro I have broken my re-occurrence cycle and been clear for 1 year now, except for a rash mistakenly assumed to be GD as it was on my lower back torso and my derm said it was 100% related to the adult shingles vaccine I had gotten earlier in the week. The rash was more plaque like in appearance and not my usually hundreds of little bumps. It went away after 2 months. It felt very similar, yet not as bad as GD, but shingles is reported to feel much like GD.
I do wonder about those that have success with steroids. Often when they stop them the GD comes back with a vengeance. It seems it needs to run it's course and it can be delayed or stalled but then catches up when off steroids.
Keep searching the internet, have heard Facebook has a good site, but this site has been helpful for me. If it hadn't been this site I would have never learned about cilantro.