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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)Comment receiving replies
You got my attention when you mentioned fiberglass-like pain. All your issues- burning, itching and fiberglass pain pretty much sums it up for me too. My first outbreak lasted a year, how long was yours? I too hope you are at the end of this breakout, sadly for most of us it comes and goes. For me steroids never helped with GD.
I have resumed my normal outdoor activities as I am in remission, but I have avoided taking hot baths in my bubble tub out of fear. Because I also have another form of eczema avoid all treated water like pools or hot tubs. Hot water when GD is active for me hurts along with heat, sweat and friction
Have you read this entire blog. Really crucial information was shared around Feb of 2019, read all our posts as finally I found something that has helped me.
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Thank you for your post. Its so good to know that It gets better! I had my first episode in the fall. That’s when I was diagnosed. It improved after 2 weeks of the triamcinolone. Then just about 2 weeks ago it started up again. I have been reading more about it and am avoiding triggers but just couldn’t take it anymore so I broke down and started the steroid again about 3 days ago. I have improved some so I would like to discontinue it. I’d prefer to avoid it as much as possible due to potential side effects. But I am afraid if I stop too soon symptoms will return. I understand the issue with heat, sweat, and the friction. I could hardly stand to have any clothing touch my back! I made a loose halter top out of a cut up and safety pinned beach towel to wear around the house! I have had to use cold packs to cool off just laying in bed! I am so grateful to have found this site! I will look up the posts you referred to. Thank you for the advice. In the meantime, if you are open to sharing what worked for you I would love to know. How long did it take for symptoms to resolve completely? When did you resume your outdoor activities? Thank you again for sharing.