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← Return to Grover's Disease: What works to help find relief?
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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)Comment receiving replies
Please help! I am at what appears to be the end of a SEVERE Grover’s Disease flare and am scared to do anything wrong for fear that the debilitating symptoms will return. I have been avoiding clothing on the area (as much as possible), heat, and sun for about a week and have been using Triamcinolone Acetonide Cream 0.1% twice a day for about 3 days. But I don’t want to use it anymore if I don’t have to. The rash looks much better and the burning, itching, fiberglass-like pain is almost gone. I actually slept last night which was a first. There is still a mild underlying itch and some bumps present. Is it too early to stop the steroid cream? When can I resume my normal life? I live in Florida, it is hard to avoid heat. I enjoy being outdoors; gardening, biking, swimming in my pool, and getting in the hot tub after a long active day, but I am scared to death that the horrible symptoms will return. How do we know when it’s safe to go back to normal life? Thank you so much for any advice/input. I am so grateful for this site!
Replies to "Please help! I am at what appears to be the end of a SEVERE Grover’s Disease..."
You got my attention when you mentioned fiberglass-like pain. All your issues- burning, itching and fiberglass pain pretty much sums it up for me too. My first outbreak lasted a year, how long was yours? I too hope you are at the end of this breakout, sadly for most of us it comes and goes. For me steroids never helped with GD.
I have resumed my normal outdoor activities as I am in remission, but I have avoided taking hot baths in my bubble tub out of fear. Because I also have another form of eczema avoid all treated water like pools or hot tubs. Hot water when GD is active for me hurts along with heat, sweat and friction
Have you read this entire blog. Really crucial information was shared around Feb of 2019, read all our posts as finally I found something that has helped me.
This is kind of a suggestion to all those with sleeping problems, take it for what it's worth. Having been in the restaurant business for my whole adult life, I have sleep issues. I generally don't fall asleep before 3-30 AM, and would probably lie awake for another hour if I didn't start taking trazedone. For years, I mistakenly drank wine and bourbon to sedate me, and I actually slept very well. About 4 years ago I stopped the alcohol. Best decision ever, BUT, I couldn't fall asleep. I tried everything, but nothing worked until the trazedone. For awhile I would take it with CD oil. Boy did I sleep deeply. I realize that what works for one person may not work for another, and I understand that many people out there are resistant to taking more drugs, for good reason. For myself, as someone who loves his sleep, the benefits of trazedone far out weigh the minor risks involved. Now with GD, I don't think I would ever fall asleep without it.
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Hi @alyssar and welcome to Mayo Clinic Connect. You'll notice that I moved your message to the main discussion about Grovers disease. I did this to introduce you to other members who actively participate in this support group, like @gardeningjunkie @jbd3 @nodgabnoj @mariannj @mnitchke and many more. You can click VIEW & REPLY to scroll through past posts.
I'm happy to hear the you seem to be at the end of a flare. Good for you for asking for tips on getting back to post-flare life and how you can avoid another outbreak.
Alyssa, was this your first experience with these symptoms? Did you doctor diagnose it as Grovers?