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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)Comment receiving replies
Thanks for your, always informative, response. I am going on to my 8th month with this situation. I do believe that the shingles I was doing smoothies for about two months, but gave them up because they didn't seem to have an effect. I'm back doing them again. I did two rounds of oral steroids over a period of two months, 7 days each. The relief was blessed, but the itching has returned. I knew it would, but it is possibly more aggressive than before. I have tried just about everything that has been mentioned on this site, but changing my diet. I eat quite thoughtfully, minimal meat, lots of fruit and vegetables. I think I am going to try eliminating the small amounts of sugar that I consume and will start looking at the diet that you, and others on this site, recommend. I find that the itching is worse mostly in the morning. Having seen one of your previous posts, I now know why. My symptoms seem to be a little "untraditional", in that I get a
lot of annoyance on my neck and scalp. Sometimes it also irritates the lower part of my legs. The last time I saw my derm, he said that, despite a biopsy, I may not have GD because my skin was so clear. I saw the picture of the woman's abdomen on this site, a couple of days ago. My outbreaks are not nearly that severe. I can't imagine her agony. What shocks me is that the medical field knows so little about this disease, and seems to take very little notice. I am constantly amazed at the amount of information that you, and others on this site, have discovered. I am going to have to make some more changes to my diet in hopes that I can at least mitigate the misery that my GD(?) has caused me. Thanks again for all your insights.
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Could you remind me what testing you have had. As mentioned I have 2 chronic forms, ACD and GD and my 3rd form of eczema should not return because now I know what triggers it. GD did bother the back of my neck and just into the back hairline and I have read that others have it in this location. Typically GD is a torso rash, but have read others have it spread to thighs and arms.
The photo you mentioned looked like some photos I have seen of GD, but didn't look like mine either. My papuales were tiny, almost goose-bump size and I had hundreds much closer together. Most severe on lower back torso, but it spread to upper back torso and then abdomen and a few on my chest. Mine were never as raised as those in the photo. My recurrences have been more limited to my back, especially along the lower back and then up my spine. If you got to dermnetnz.org and search for GD they have pages of photos and we with GD manifest slightly differently. I did find photos similar to mine, but all the photos on this site showed the rashes to be more advanced than mine, wow, as miserable as I was I felt grateful mine was not as physically advanced. However on the inside I was suffering as I had intense itching and pain. Many do not get the pain.
I never noticed that steroids helped and tried topical steroid and an injection. I never took oral steroids. Steroids did help with ACD, but if exposure to allergen was still present symptoms would reoccur.
Diet for me was an act of desperation. Like you felt I had a healthy diet. I have a big appetite and eat as much as my 250 lb husband and I weight half of that. I never dieted in my life so was unprepared for how challenging it would be. I could eat all the meat and safe veggies I wanted but giving up fruit was really hard. I used to eat at least 4 pieces daily. Now, after detox, limit myself to one small piece or half of a large piece. I didn't go on this diet plan because of GD but because of ACD. I don't know if it helps with GD, but it won't hurt you to give it a try.
Like you was shocked that so little is known about eczema. All the research money goes into diseases that kill us and yes eczema may make us wish we were dead but it doesn't kill us.
Hang in there, our first breakout is the worst. None are good, but usually don't last a long as the first one.