We are forced to get tough. Without my relentless searches, just like you and others are doing on this site I would not be alive today. My first form of eczema I developed in middle age, Allergic Contact Dermatitis, ACD, made my body feel as if it was on fire, plus itching and stinging. My derms were no help, only suggesting steroids or cortisone. I would lay in bed at night planning the cleanest and least painful way to kill myself not wanting to leave a mess for my husband or others to clean up. Even considered a train track as well as dozens of other ideas. Turns out I am allergic to 3 of the 5 classes of steroids and cortisone is in one of those classes all of which doctors were treating me with. I had to learn about testing on my own for ACD. Now I know what to avoid and no more ACD. Also finally accepted that even with contact avoidance I must give up sugar and limit gluten. A sacrifice, but it definitely helps me and others. Yet we are all unique, that's why you need to study and try anything that isn't dangerous. I even diagnosed my second form, Perioral and have never had it again- 2 derms were treating it as ACD and steroids (my 2 safe classes) actually fuel the Perioral, which I learned about on another blogging site and saw photos and descriptions on dermnetnz.org (awesome site for photos).
There is such a minimal amount of information, even for doctors, that with research you can learn all and more the doctors do. Pain is a big motivator.