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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Nov 4 2:57pm | Replies (2012)

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@jbd3

I took Accutane (Isotretinion) 40mg for 5 months, problem solved finally. My GD (that I battled for 5 years was gone the first week of taking it, but continued taking it for another 4 1/2 months). Lyderm (Fluocinonide) is a Class II topical steroid (stronger) but did absolutely nothing for me. When something doesn't work - go back to your dermatologist and move on to something else (topical). Triamcinolone acetonide 0.1% worked well for me most of the time even though it is a Class IV topical steroid. When I needed the really big guns - I used instead the Clobetasol propionate 0.05% (Impoyz) which is a Class I topical steroid (strongest there is). That would almost heal me but not quite, it would still return but sure was a relief. I have now been GD free for 14 months since starting the Accutane (Isotretinoin) 40mg last February, 2019. Occasionally I feel like pin pricks on my chest kind of what I would feel in the past with GD. Then I take (1) Accutane (Isotretionoin) 40mg pill for (4) days in a row. Problem gone by day 2. Again, GD free 14 months after having it (non-stop) for 5, maybe 6 years. There will be people on this site that will try to dissuade you from using topical steroids. Your condition is extremely chronic and possibly worse. If your dermatologist disagrees with trying something different right away from something that isn't working, then maybe you need a new dermatologist that's more experienced in this area.

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Replies to "I took Accutane (Isotretinion) 40mg for 5 months, problem solved finally. My GD (that I battled..."

Thanks for your reply. I am on Accutane 10 mg. which is a much lower dose than you were taking. I spoke with my Dermatologist yesterday and she doesn't want to increase the dosage yet pending lab tests in a few weeks(4) to see what effect it may have on my Liver. Meanwhile I am suffering from lack of sleep. irratability, poor personal thoughts, and more, not the least of which is constantly scratching some part of my body (Head, Neck, Chest,Arms, Legs, etc. etc.) I can't go more than 30 seconds without having to scratch.