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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Nov 4 2:57pm | Replies (2012)

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@help4meandu

I was just diagnosed with Grovers disease after suffering for a couple of years with painful itchy eruptions. I have 5 cats and was convinced it was a flea infestation. I have had exterminator spray 3 times, treated cats, trashed rugs and sofa and diligently washing bedding and clothing frequently. Yet still have itchy rash and bite like bumps all over. Feeling desperate and now using strong steroid creams. I have tried aloe gel, calamine lotion, take Benadryl every night or I can’t sleep. What causes this? Can stress trigger? I am losing weight and hair. Of course the current Coronavirus epidemic isn’t helping. Thank you for any advice you can share.

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Replies to "I was just diagnosed with Grovers disease after suffering for a couple of years with painful..."

I have had GD now for about 9 months and this site is the best place to learn how to manage it. I read it every day. Many of the suggestions posted here have really helped me. No one is sure what triggers the disease. I thought the shingles vaccine prompted mine, but there is no way of knowing. If you scroll back to some of the earlier posts you will see that a number of people find relief with smoothies made with a handful of frozen cilantro. Wiping down the affected areas with Witch Hazel is also helpful. The most effective treatment for me was oral steroids. You can take them for 7 days only, in decreasing numbers, as they can affect your kidneys. The other post today mentioned the light room. I did it for a number of weeks with no real results, but I can't continue for obvious reasons, so maybe it will help after I go back to it. Somebody mentioned the value of Lysine. I just received my bottle. I strongly advise you scroll back to the beginning of these blogs and read them. You will gain a wealth of knowledge. One thing you must understand is, what works for one person may not work for another and, that they all take time to work at all. It is a very frustrating disease and you must be patient, if you can, in attempting to deal with it. Stay hopeful.

I have 3 forms of eczema, GD is one. Another miserable form is Allergic Contact Dermatitis,ACD.
Your mentioned an itchy rash and bumps all over. GD is normally limited to front and back torso area. Please Google ACD, which can cause symptoms all over and research the 5 Day Extended Patch Test. The True Test is a common test kit performed by specially licenced derms or allergists. This is not the simple environmental test for allergies to pets, pollen, molds, grasses, dust mites and so on. With this test I learned what detergents,makeups, soaps, fragrance, preservatives (in lotions and topicals as well as is dish soap and so on), fibers, adhesives and so on to avoid for life. The very cleaning products you are using could be seeping though your skin and into your bloodstream raising your histamines. The very clothing, bedding, furniture fibers, carpets and flooring can be off gassing and or with contact seeping though your skin. Skin is not occlusive, what is surrounding you on the outside is getting inside of you and into your bloodstream. Yes it is a bother and expensive to change out your surrounding. Or for example like me need to carry around a plastic bag to cover a theater seat or doctors office chair because of fibers treated with caustic fire retardant, Scotch Guard and made with blended fibers for example, but it can be done. GD is actually more complicated as the triggers are not a immediately obvious. Many with eczema have a collection of forms, so don't assume you only have one type to deal with.