Auto-immune response?

spittendrigh, After having Long Covid for 2 years, I feel I have tried everything. I do find that taking antihistamine (I take 2.5 of children's liquid zyrtec) and vitamins I am seeing results. Vitamin D3, Zinc, B Complex, B12 dissolvables (Solgar) & B12 injections, Quercetin, Vitamin B2 (for migraines), a good probiotic (my gut got really out of whack from COVID) all seem to have helped, but, it takes time for vitamins to work and you have to be consistent. Everyone is different with COVID, so please talk to your doctor before starting any of the above supplements. Stay hydrated, working on getting extra weight off and keep moving as much as possible.

I went to an Integrative Medicine doctor that specialized in LC. I could not tolerate the infusions. It seems I am so sensitive to everything. Glutathione is one of the things I couldn't take that tends to help Long Covid. Naltrexone (prescription at a compounding pharmacy) helps a lot of people (It gave me headaches!) as does NAC (Amazon by Pure Encapsulations) also helped me greatly with the thick mucus....BUT, it can be very drying to the eyes. I did not use it daily.

I believe that COVID puts your immune system into overdrive and it takes it a long time to calm down. I found that most of my pre-existing issues worsened from having COVID. I went to a COVID recovery clinic in my area and was diagnosed with LC back in 2023. I have had COVID twice...the first time was the worst.

I hope this helps in some way for you. Praying for you. Blessings & Continued Hope.....

I'm at 4 years, two bouts (tested pis and time) 2 years apart.

Getting there but still have some symptoms.

Perhaps everyone is different. No caffeine no alcohol and struct adherence
to only two (big) meals per day has helped me. But still have occasional
Atrial Fibrillation and a weird dizziness, that is more like almost
feinting than dizzy

>-=o>

My son is seeing significant improvement from IVIG infusions. He has had 3 infusions so far and his ME-CFS is almost in remission. He has worked out in gym twice now without PEM. Unfortunately his insurance does not cover these treatment and at 5K / infusion, I'm not sure we can continue these treatments. I read that symptoms can return when the infusions stop. Has anyone had experience w IVIG? Results? Success in getting insurance to cover treatments? I am almost afraid to actually feel joy from this as I am always expecting the next "crash". Appreciate all of you on this forum!

I have had LC for over 3 years. I take Gabapentin, Cymbalta, blood pressure medicine and medication for my awful Acid Reflux. My autonomic nervous system is being impacted by LC - it is your Vagus nerve. It controls so much. I have okay days, but yesterday and today have been awful. Barometric pressure impacts my neuropathy. I have POTS which causes dizziness and blacking out. I pass out and fall. I fall because my knees buckle. I have CRPS in my right foot, my neck and back. It is now in my hands which is causing me a great deal of distress. CRPS - Chronic Regional Pain Syndrome - the worst stage of neuropathy. I saw a Physiatrist at UVA. With all my symptoms - ailments caused by LC, they are all life sentences. The best I can expect with pain management is a 50% reduction. I have days where I can do more, but I mostly pace myself so I don't have horrible crashes and am bedridden for days. Then I have days that I can't do anything, can't even stay awake on some days. I would love for there to be cure, but I have been told that LC turns on our bad genes. Long COVID is what we refer to this as, but really we each have had LC turn on genes that are causing disabilities. I have been working but as my hands get worse, that may no longer be possible. I also have brain fog when my symptoms are out of control and can't remember words and/or think the right thing but say things that make no sense. Sometimes I am aware it happened others I am not. I hate it so much but it happens and I don't know when it will happen. Life is very interesting and scary. But I am determined to survive this and have as much quality of life as I can even if my new life is not at all what it use to be. Good luck!

I have Long Covid also since March 2020. Had severe vertigo and could not get up off the floor. I had to go to the ER. Have been struggling ever since. I have tried so much stuff, therapies, vitamins, herbs, exercises. I still have vertigo, chronic fatigue and back/neck pain so bad. I just go day by day. I was just found a new treatment for joint and muscle I am going to give it a try. It is a proteolytic enzymes.