Post-COVID Neuropathy/Yale paper

Merry Christmas Hunh!
Neuropathy is a joy as well. The brain fog has made me forget friends names I’ve known for years. I was forgetting long time clients as well before I had to quit. I was a multitasker. I ended by not being able to do 1/4 of my workload. Not enough hours in a day to try and complete it. My brain is not fit for any job but not is my body now either.

With each post and each article read, with symptoms increasing and no one with whom to talk, it is depressing. I try daily to still work - at 77 - and have to with fortunately little brain fog just body and mouth issues. Pain is exhausting and it's hard to explain to most.

With each post and each article read, with symptoms increasing and no one with whom to talk, it is depressing. I try daily to still work - at 77 - and have to with fortunately little brain fog just body and mouth issues. Pain is exhausting and it's hard to explain to most.

Had Covid 12-24-23 and have had nuropothy in both feet ever since.

Do you have a post Covid Dr?

A fiery burning in the soles of the feet? Yes. But I can feel the floor and am fully functional if you don't count near
exhaustion after 3 minutes of walking.

Sorta. After my PCP (of only 1.5 years after my PCP of 25 years retired) told me their practice wasn't even READING the google alerts I got and knew nothing about long COVID, I a) switched to a new practice and b) began looking for solutions. I saw the head of a major hospital's practice - one of the very few post-COVID docs in the area. I've seen him once where he, after my getting a 2 hour ultrasound and being told by a doc in his hospital system that I had lymphedema and referred to a fitter of wraps, I saw the post-C doc. He diagnosed some other things and gave me NO referrals except PT and massage therapy!

Not only is my neuropathy getting worse, the rash that I got with COVID has returned. The ER (2 visits), my then PCP, and the dermatologist I saw then (April - May 2023) did any lab work so there's no base line. My pain (severe spinal stenosis - and looking closely at the other pain post COVID) doc (laughing because I have never seen in my entire 77 years the total docs I see now!) who I'll see in person soon will look at all this. Next Mon. I will do a televisit w/ the post-C doc who doesn't seem terribly interested in studying me more.

Are we all case studies?

Now I’m laughing at that. I think we are. Like lab rats. lol. I know I have chest pains. So bad at times I even sweat and vomit. Took over 6 months to get into a cardiologist. Then they did 2 stress tests (at hospital when rushed to er twice) at CAT scan, MRI and two ECHOs so far. Only a little thickening of the heart, yet I still get these attacks. Last one went into neck, jaw, left arm and back. I did bother going to hospital cause they say my heart is fine. My cardiologist said, go to er if this happens again. I asked, why? It’s a waste of my money. I think LC does things to you like ghost symptoms ( my term). Now the pain, neuropathy, joints, fatigue are all real and steady. I wonder if they have to catch the heart while it’s happening?? I have a halter monitor coming I am to wear for a month. To see is they can catch some of this. I have SVT. Prior problem and tachycardia is from COVID. So they are watching both of those too.

@yaya77066 - by chance did you have any bottoms of your heels peeling or blistering post COVID before the neuropathy?

Yes, walking from one room to another in our not-big-apartment is exhausting. I can tell I'm walking and 'feel the floor' too. It's that the burning wakes me often during the night.

I know that question was to another but my feet burn, pain etc too. I feel my heartbeat on my right one all the time. Mine get dry and I feel like bottoms could crack. I try and lotion as much as I can. I also go get pedicures about 1 time every 6 weeks. My only fun outing really. Soothing in the massage chair. Feet feel great for a couple days. 🤭