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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Nov 4 2:57pm | Replies (2012)Comment receiving replies
I checked out MGUS and read about it forming in the bone marrow, it's related to lymphoma and lymphoma is related to leukemia. Something going on with our immune systems. Many with Chronic Lymphocytic Leukemia, CLL the type of leukemia I had have the disease mutate into Lymphoma.
Yes summer is a season to dread, especially since I am obsessed with outdoor landscaping. I have had to discipline myself to get up at dawn and be back inside no later than 11 in the summer. Shower immediately. I prefer to do house chores first then garden, but must reverse that order. When in a hard breakout any heat causing any sweat hurts so any outdoor activity with exertion is off limits.
All my subsequent outbreaks have been somewhat less severe in rashed areas and duration than my initial one year complete wrap around torso rash. Yet itching is itching. One mosquito bite can be maddening and a lesser outbreak of GD is just about as miserable. At least my sides have always been clear so at night I can lay on them and have trained myself not to move. My last 2 relapses did not cause the severe pain of previous ones.
Did you try the cilantro and witch hazel for control. I know the cilantro stopped one outbreak and the witch hazel used on the few papuales I still get on lower back at waist and across abdomen seems to help heal and control.
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@gardeningjunkie ....I remember well we spoke in length about all our symptoms and remedies. I just dont post here very often, but I do check in from time to time...so I remember you very well. You've been helpful. As for MGUS related to lymphoma, I have no idea. I did specifically ask my oncologist last year, and he said I have IGG KAPPA, with very low IGM'S which are the healthy main white cells to fight infection. One thing I believe, my rashes started 1st, then I was diagnosed with MGUS. I'm sure drs aren't connecting the dots on the two, but I feel something is wrong. There's really not much more they could do for me, except monitor my bloodwork, and see derm for skin issues.
I did take photos of my body when I broke out badly, and scabbed, because by the time I get an appt I'm almost healed, so I don't think they believe how sick I felt. I dont have pain, but, I had severe fatigue, and chills...I think the papules may hurt. I'm so done with witch hazel and every topical, yes, I've eaten cilantro...not doing that every day. I even shaved the papules and applied peroxide, out desperation, or maybe I was losing my mind(no sleep)...I slept with a brush so I could scratch after hours of resisting...(mental torment). One night back in 2013, after a day the beach, I thought maybe the sun and salt water would draw out the rash. The complete opposite happened that night, so, so, bad, covered in red itchy hot bumps. I literally sat on the bathroom floor and cried...I took my shaving razor and shaved off the rash...then drenched myself in peroxide. The stinging burn was actually a relief. Looking back, I feel so bad I resorted to desperation, and did that. Thankfully, now, if that happens I've got meds and prescription cream.
Nice of you to look up MGUS, and informing me. I'm not ruling out lymphoma, because I've had enlarged lymph nodes , one surgically removed in 2014, but tested benign...all so very strange.