Thanks for the info about the hydro. I see my cardiologist next week and need a refill and will ask for more info on this drug. Surprising information about effects of tapering off. I didn't realize this was addictive like opium. I read the literature and wasn't alarmed by the warnings. The cardio also tried prescribing me Xanax and I tried one pill and hated it. It made me feel spacey-weird. I really resisted asking for something to help with stress as my mother was into Valium and Vodka so I have always been fearful of addictive drugs.
You mentioned seeing an oncologist, they are much better at filling prescriptions we request as I learned. I survived Leukemia, do you have an active cancer? Forgive me if you already told us, but with so many bloggers I loose track.
I have had GD for about 6 years with my 1st, 1 year outbreak the most debilitating. It sounds like you go into remission at times like many do , myself included. Even when not symptomatic my torso skin is hypersensitive, but the pain and itching are so minor; not an issue. I will always have a few scabs from papules even when not in an outbreak.
Hoping we stay in remission, but I am realistic and know that's not realistic.