← Return to Grover's Disease: What works to help find relief?
DiscussionGrover's Disease: What works to help find relief?
Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)Comment receiving replies
Replies to "I've struggled with Grover's for 2 years. It all seemed to start when I stayed at..."
Wow, you have a serious symptoms. So very sorry.
Have you ruled out having various forms of eczema. Yes I have GD, but also have severe Allergic Contact Dermatitis, ACD as well as a few cases of Perioral Eczema. Why assume you only are dealing with GD? Eczema is an autoimmune disease and most of us with autoimmune diseases collect more as we age.
Have you been tested for ACD with the 5 Day Extended Patch Test? You need to rule out other forms of eczema in addition to GD. For example I am severely allergic to Mercaptobenzothiazole, MBT. This is an element if rubber, just like latex is from rubber. MBT is used to blend materials and memory foam is one, as well as nylon, poly/cotton, rayon and so on. The pillow you used could have had memory foam or blended covering materials you are allergic to. Even if you cover all with a 100% cotton towel elements off gas into you via your skin which is not an occlusive barrier. I also learned I am allergic to several adhesives which are used in fire retardants, spray starch, wrinkle free material processing, Scotch Guard and more. Any of these elements could have been used in this pillow. These materials could be used in a million products you contact or off gas into you.
Medicare as well as most insurance policies cover this expense test which is usually about $1,500. I have been tested twice. The first time I learned of only 6 allergies our of 78 sites, but avoiding these stopped my symptoms. 5 years later had this test again because of issues and learned of severe acrylic allergy and have eliminated those contacts. We collect allergens as we age. I didn't have these allergies in my youth. Each subsequent contact lessons our reaction time and increases the severity of reaction.
Controlling ACD has no relation to GD, yet you are atypical with the locations of some of your rashed up area so am suspecting other types of eczema, like ACD in combination with GD.
Also do not discount the benefit of an anti-inflammation diet. As a last resort and only reluctantly now follow the William Crook, MD, "The Yeast Connection Handbook". This dropped my histamine levels by killing off the yeast in my body. I no longer require a potent corticosteroid shot, Kenalog 40 annually to control the internal all over sensation of burning, stinging and random taser like stinging because of a rigid detox for 3 months and then the maintenance plan. A challenge as this diet means zero processed sugar for life!!!! Yet within 6 months sugar cravings will leave. I will never start up on processed sugar again and be true to this diet now for 1 and 1/2 years.
I am not a medical professional, just an eczema victim who has been forced to understand what has been happening to my body.
Have you gotten a biopsy and formally diagnosed as having Grover's Disease? It sounds more like you may have scabies rather than Grover's. There was a woman on the GD facebook page that had both Grover's AND scabies and was misdiagnosed as just having GD. You mentioned "organism's feces". Grover's Disease is not an "organism" to my knowledge the cause is still unknown. Have you been tested or treated for scabies?