Non Hodgkin's Lymphoma- Watch & Wait Approach

Hi there. Agree with the geeenery and nature but Im living in an apartment close to Mayo in Jax so not a lot of nature. I went on a brisk walk on Sunday but I think I may have over done it! Very sore!
Before cancer diagnosis I biked , hiked, swam and walked so can’t wait for this to be over.

@nschlacht … Hi, my name is Kathy. I was diagnosed last May with Follicular Lymphoma Stage 3. Had a 2nd biopsy at Mayo when my doctor there was concerned that I may have transformed due to the uptake on a couple of my nodes being “hotter” than they see with Folicular. The good news is I hadn’t transformed. Can I ask for a little of your history on how long you had Follicular before it transformed… Had you received any treatment prior to transformation… What were your symptoms or how did they find that you had transformed. ?? Being Stage 3/Grade 2… I am concerned about transformation. I am on “Watch & Wait” for now. Thank you… and I hope you are doing well. God Bless ❤️

Faith is most important and a positive outlook as hard as it is at times to keep that it is imperative to have. A positive attitude is half the battle. I am having to work hard this am to keep it. Just tired this am and have a list of things I need or want to get done this month. I am cat sitting for a friend until next week and my cat is miffed that another cat is in the house. Yesterday was so busy think just tired and have to catch up a little today. I will feel better when I get moving and start the day.

Well I just hit the wrong key and think my incomplete reply is out there. LOL. Oh well, no harm done except you may think what the heck. HA. All is well just keep the positive vibe and happy talk. God is in control.

I agree. I share with folks that my shift in mindset was and continues to be vital while facing the challenges of a rogue cell journey. I have learned to rest more, which is a big bonus. However, I still feel a bit guilty from time to time.

I was diagnosed with Non Hodgkins B cell Lymphoma in 2017 and did treatment followed by blood tests, first monthly, then every 3 mos, 6 mos and annually….now, 7 years later, I see the oncologist annually with blood tests prior to visit.

My non Hodgkins Lymphoma was indolent and I did treatment for 2 years with NO side effects

Welcome to Connect, @palepa. Congratulations with your successful treatment for NH B cell Lymphoma. That’s very encouraging for anyone else who received a similar diagnosis. Being down to annual visits is a big milestone. I was granted that length of time between appts recently and it’s pretty liberating.

You mentioned having treatments for 2 years. If you don’t mind sharing, what medication was used?

I was treated with Rituxan. If I remember correctly the infusions were 1x week for a month, then I think every 3 mos. I had no symptoms when my Lymphoma was discovered and no side effects from treatment. I could have chosen a 6 mo course of treatment which would have also included a chemo. I elected the longer course w/o the chemo to hopefullpreventdestruction of good cells etc. As with others with my condition, I continually wait for the other shoe to drop as we all know the cancer isn’t gone and can return. I’ve met one person who has had it 3 times and another who in 15 years has not had a repeat. I hope this was helpful

Of course