← Return to Non Hodgkin's Lymphoma- Watch & Wait Approach

Discussion
Comment receiving replies
Profile picture for elliwinders @elliwinders

After finding a lung nodule on an abdominal CT in January 2024, I've been through a ridiculous amount of imaging, biopsies, and eventually surgery to be diagnosed with MALT Lymphoma. I had a wedge resection, which removed the nodule from my lung, though there are a couple of very small nodules left behind. I also have a lesion on my vertebrae, which may or may not be related. It showed up last Sept. I'm going to be getting a colonoscopy and endoscopy in July to see if it is in the digestive tract due to persistent diarrhea since July. Once I have those results, we will decide if treatment is necessary (likely a 4-week course of rituximab infusions). I have annular granuloma on both legs that has now spread up to my thighs, and iron deficiency. When I had a bone marrow biopsy last summer, they thought I had some sort of autoimmune disease. I also have adenomyosis (found on MRI in May). I'm 44 and I feel like my body is falling apart. I understand that this is an indolent cancer, so watch and wait is often the only thing to do. I think I'm mostly concerned about the fact that most people diagnosed with this form of lymphoma are in their 60s. I have read that rituximab loses efficacy the more you have it. Is there anyone else here who has been diagnosed at such an early age for it? Or anyone who has had it more than 10 years? I'd be curious to know your experience.

Jump to this post


Replies to "After finding a lung nodule on an abdominal CT in January 2024, I've been through a..."

@elliwinders, so much going on. I can imagine you feel like your body is falling apart and betraying you. It's not supposed to be this way in your 40s.

You might want to join this discussion:
- Recent diagnosis of Gastric Malt Non-Hodgkins Lymphoma: Questions https://connect.mayoclinic.org/discussion/recent-diagnosis-of-gastric-malt-non-hodgkins-lymphoma-and-am-requesti/

How are you doing?