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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@nodgabnoj

Hello again, I just read the post about the salt cave and your response. I am writing you because you seem to be extremely knowledgeable about these issues. I think I noticed that at some point you stopped doing the cilantro because it stopped working. I have been drinking cilantro smoothies for about a month now with no real effects that I can point to. I drink them with the hope that over time they will have a cumulative effect. To your knowledge is there a point at which you should notice a difference or does one just continue to hope that eventually they will work their magic ? Very little other than Motrin and cortisone creams has very much success with me. I do the light room and witch hazel as well. As I'm sure you know it is unbelievably frustrating. I do have some days better than others but on the whole I just scratch and suffer through it. I am going to Bali for a month in March and hopr that the sun and salt water give me some relief. I realize that any real cure is more complicated than just getting rid of the itch. Just praying for a cure. Many thanks.

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Replies to "Hello again, I just read the post about the salt cave and your response. I am..."

So sorry the cilantro isn't helping. From my reading only about 50% were helped and for me it worked magically for 8 months. Salt water is anti bacterial so could help with scabs, but when broken out sun is painful on my skin and I avoid it. Also heat is painful. Plus sitting or laying leaning on my back is extremely painful, so an airplane ride would be miserable leaning forward or trying to lay on my side. I found I preferred to stand instead of sitting if possible. Fortunately my sides have been clear to lay down on my sides. I never scratch, even when itching or else the result is extreme itching afterwards, plus broken skin that won't heal.
I am allergic to cortisone.
I mentioned the amazing relief I was getting with the px Hydroxyzine HCL 25 mg. Best itching relief I have found, yet my 1 month old recurring breakout is waning already I believe from the WH. Yet WH is not helping you. I also think the histamine in the Hydroxyzine is helping calm my inflammation.
I wonder if nothing is helping because you are having your initial breakout. My initial breakout lasted 1 year. It covered a larger area, all of the upper front and back torso compared to subsequent ones. Sides clear.
I am hoping for your sake once you tough this initial breakout your subsequent recurrences will have less severe symptoms.

I was a little in to my 2nd month before I noticed any change. a few more before it was completely gone! Try to stick with it. I am hopeful you will find relief.