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DiscussionGrover's Disease: What works to help find relief?
Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)Comment receiving replies
Replies to "UPDATE - I finally got in to see a Dermatology Specialist at the Mayo Clinic on..."
I am blown away by all the testing and information you have learned from the Mayo. They seem very thorough. Interesting about no sign of GD. Did you ever test positively to a biopsy before? I only had it biopsied once and it was at the end of a 1 year initial breakout and it came back negative, even with loads of scabs left. Even when dormant I can feel little bumps under my skin in GD areas. I have read our proteins change with GD and we loose the collagen holding our cells together and would think that would show up in a biopsy, regardless of whether it is active or not. I have no doubt I have GD.
The Hashimoto's is chronic I believe- a life long disease which one of my best friends has and has had since late teens, now 65. I do know it has caused her a variety of health issues, yet she leads a very active life. She has had terrible allergic reactions at times but not eczema, more like the hives you talk about. I saw her once when her entire body turned dark pink and she was swollen all over. She had to go to the hospital.
They have you on really high doses of anti-histamines. I take 4 of the all day anti-histamines daily and have for years as recommended by my allergist. Not sure it helped with my types of eczema but it sure has cut my hay-fever symptoms back. Almost to zero and I used to have terrible hay fever taking a standard dose. Have they told you how long they will keep you on this high dose.
You are a fighter and appreciate you keeping us updated as I always learn from you.