Non Hodgkin's Lymphoma- Watch & Wait Approach

Posted by Jackie, Alumna Mentor @travelgirl, Jun 15, 2018

I would like to meet others who were diagnosed with a lymphoma and are on watch and wait treatment.

I have been on a watch and wait lymphoma watch now for 2 1/2 years. I currently get blood work done every 6 months and a CT Scan once a year.
Has or is anyone else having the cancer monitored like this? Are there people who lived their whole life without ever getting treated for lymphoma?
Would love if we could share our progress on here.
Jackie

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

nschlacht | @nschlacht | Sep 24 9:21am

In reply to @emmiet "Thank you, @nschlacht, for your encouraging words. What types of exercises are you doing during treatment?..." + (show)

Hi there. Agree with the geeenery and nature but Im living in an apartment close to Mayo in Jax so not a lot of nature. I went on a brisk walk on Sunday but I think I may have over done it! Very sore!
Before cancer diagnosis I biked , hiked, swam and walked so can’t wait for this to be over.

katharine56 | @katharine56 | Sep 24 8:01pm

In reply to @nschlacht "Im in the middle of RCHOP for transformed follicular lymphoma and agree with the proactive approach..." + (show)

@nschlacht … Hi, my name is Kathy. I was diagnosed last May with Follicular Lymphoma Stage 3. Had a 2nd biopsy at Mayo when my doctor there was concerned that I may have transformed due to the uptake on a couple of my nodes being “hotter” than they see with Folicular. The good news is I hadn’t transformed. Can I ask for a little of your history on how long you had Follicular before it transformed… Had you received any treatment prior to transformation… What were your symptoms or how did they find that you had transformed. ?? Being Stage 3/Grade 2… I am concerned about transformation. I am on “Watch & Wait” for now. Thank you… and I hope you are doing well. God Bless ❤️

quimbie | @quimbie | Oct 6 6:28am

In reply to @emmiet "Thank you, @nschlacht, for your encouraging words. What types of exercises are you doing during treatment?..." + (show)

Faith is most important and a positive outlook as hard as it is at times to keep that it is imperative to have. A positive attitude is half the battle. I am having to work hard this am to keep it. Just tired this am and have a list of things I need or want to get done this month. I am cat sitting for a friend until next week and my cat is miffed that another cat is in the house. Yesterday was so busy think just tired and have to catch up a little today. I will feel better when I get moving and start the day.

Well I just hit the wrong key and think my incomplete reply is out there. LOL. Oh well, no harm done except you may think what the heck. HA. All is well just keep the positive vibe and happy talk. God is in control.

emmiet | @emmiet | Oct 7 11:27am

In reply to @quimbie "Faith is most important and a positive outlook as hard as it is at times to..." + (show)

I agree. I share with folks that my shift in mindset was and continues to be vital while facing the challenges of a rogue cell journey. I have learned to rest more, which is a big bonus. However, I still feel a bit guilty from time to time.

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