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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)

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@carrie14

I'm glad you have some extra pills you can take for those few days. I am going to wean off the isotretenoin in early January and I'm hoping to stay clear. I have continued the cilantro smoothies daily and actually really enjoy them. I do still have increase itching and redness on my chest about a week before my monthly cycle so I feel like there is some kind of hormone connection to mine. One thing that I have decided to do is genetic testing to confirm or rule out Darier's Disease which is what 2 dermatologists said I have. I disagree and think I have GD but in order to prove one of us right, I will need to do genetic testing to see if I have the mutated gene for Darier's or not. I told my dermatologist that if the testing comes back negative and I don't have Darier's Disease then my assesment of GD must be correct, and she said that's a good possibility. I also went to an allergist to see if they thought it was an allergic reaction to something and they did not think so, but I asked for a progesterone skin prick test and they said they could do it but it's not covered by insurance and would cost me over $200. I told them that I would wait to see what genetic tests found first. All of these different tests and appointments cost me so much per month even with insurance but I am not willing to let someone guess at what is wrong, I want a difinitive answer. I used to work out very hard up to 3 times a week, but since sweating seemed to exacerbate my skin, I have stopped. So for now I keep on with this daily regiment and come January we will see what happens when I stop. I really want to get laser treatments for my chest but have to be off isotretenoin for at least 6 months.

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Replies to "I'm glad you have some extra pills you can take for those few days. I am..."

Were you biopsied for GD? I was and it came back negative but I was at the end of my first outbreak, going on 1 years, the scabs were beginning to fall off. My sister's GD is dramatically less severe than mine yet her biopsy came back positive. She has an ongoing rash under her breasts. My derm said the GD must be in the active stage for biopsy to be accurate. No doubt I have it so no point in another biopsy, also I am symptom free right now.