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← Return to Grover's Disease: What works to help find relief?
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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)Comment receiving replies
Yes - I was clear by the second week (February), but stayed on for 5 months just to be sure (doc wanted 6 but I asked to go off at 5 months). I was so tired of the side effects being very, very dry skin. Lips are the worst part, almost unbearable. I have felt two instances of festering of Grover's along a crease across the front of my chest (where I had it before, 5 years). I quickly did cilantro smoothies but just can't seem to stay on them. I do one cilantro pill a day (I thought it might have caused some acne on my chest before). When it festers (can't think of a better way to say it) I have a lot of extra isotretinion pills, so I take one per day for 6 days. It's gone by day three. I can't think of anything I did to bring it on except I've had some health issues and I've been working out very, very hard and running even. Lot's of treadmill but I always do that. I did use a tanning bed a couple few weeks ago. Wondering if that did not help. Gardenjunkie - I find it interesting that you and you sister both have GD. Some sort of genetic thing possibly? I get eczema too - on my lower legs just above ankles. Always same places. Usually in winter - very dry conditions. Triamcinolone usually takes it right away. Now I use a lot of Neutrogena Hydro Boost, especially on the legs - arms.
Replies to "Yes - I was clear by the second week (February), but stayed on for 5 months..."
Seems GD is not supposed to be genetic according to doctors. Yet what are the odds we both got it in our 60's. I do have 2 other forms of eczema. Do you have Allergic Contact Dermatitis, ACD causing the rash on lower legs, perhaps from elastic or blended material in socks? Why is it hard to stay on the cilantro smoothies. I learned I can freeze it, which helps. I buy 4 bunches at a time, use 1/2 bunch a day for 6 days (I have learned how to store in frig ad keep it fresh) and with the 3rd bunch I freeze after purchase in 2 divisions and then use that for 2 more days. Yet if you travel staying on the smoothie would be challenging. I have heard the cilantro pills do not help.
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I'm glad you have some extra pills you can take for those few days. I am going to wean off the isotretenoin in early January and I'm hoping to stay clear. I have continued the cilantro smoothies daily and actually really enjoy them. I do still have increase itching and redness on my chest about a week before my monthly cycle so I feel like there is some kind of hormone connection to mine. One thing that I have decided to do is genetic testing to confirm or rule out Darier's Disease which is what 2 dermatologists said I have. I disagree and think I have GD but in order to prove one of us right, I will need to do genetic testing to see if I have the mutated gene for Darier's or not. I told my dermatologist that if the testing comes back negative and I don't have Darier's Disease then my assesment of GD must be correct, and she said that's a good possibility. I also went to an allergist to see if they thought it was an allergic reaction to something and they did not think so, but I asked for a progesterone skin prick test and they said they could do it but it's not covered by insurance and would cost me over $200. I told them that I would wait to see what genetic tests found first. All of these different tests and appointments cost me so much per month even with insurance but I am not willing to let someone guess at what is wrong, I want a difinitive answer. I used to work out very hard up to 3 times a week, but since sweating seemed to exacerbate my skin, I have stopped. So for now I keep on with this daily regiment and come January we will see what happens when I stop. I really want to get laser treatments for my chest but have to be off isotretenoin for at least 6 months.