Hello Group, I have found this site and read through this whole long thread and am so happy I did. My story is long, but to sum it up, I began breaking out in a weird rash around Oct 2018. It seemed to flare up around my monthly period and I was also getting a cold sore at this time of the month as well. I went to multiple doctors and no one seemed that concerned or knew what it really was. I had two biopsy's and was told I had Darier's Disease....I did not think so. I began following a facebook page for Darier's and just did not feel like my symptoms were similar and so I kept seeking answers. Throughout all this time I continued to get worse and my rash never went away with any prescription meds the dermatologist gave me. It would eb and flow and seem to get better just to come right back. My dermatologist said my last resort would be to get on oral isotretenoin and when I could no longer physically and especially mentally handle the daily itching and red rash, in July I began isotretinoin. I am now 3 months down and while my rash has gone, the itching was still relentless. My itching was only on my neck and chest. I have no symptoms anywhere else. I still can't pinpoint why this all happened and it's still a daily struggle but I have also been on the cilantro smoothie path for over two weeks now and the itching is 90% gone! I have always had anxiety since college and this condition really hit me hard. I have gone on meds to treat the cold sores and have wondered if the meds caused the rash, been told by doctors No. I have also wondered if a flu shot I got last Oct could have caused it. I wonder if my hormones changing at 35 could have caused it...that's what is so hard not knowing what caused it to try and avoid it. It has taken me almost a year to heal physically and mentally and while it's still present, I am so worried to get off the isotretenoin and acyclovir in case it decides to flare up again. I am going on a cruise this Christmas and am also worried that a week without the cilantro smoothie may cause itching to return, but also just worried in general about whether I should keep on these meds until after the trip. I hope my healing lasts and this never comes back, but I am fully aware that this could be ongoing and at my age of 37 it is so scary. Thanks for listening and appreciate hearing others sucesses.

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