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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@gardeningjunkie

Your post is painful to read because myself and the others on this site feel your pain and misery. How many of us are there? Your case sounds extremely severe. My rash was more traditional- back of upper and lower torso and front and it was miserable enough. Yes cilantro is a "miracle treatment" for me, I will drink it daily for life. Like you steroids did nothing. Please keep up with the cilantro for at least a month since your symptoms are severe, you are in a full blow and active breakout and may take longer to respond. For me I was just beginning a recurrence, only a month into it so when Kimass1 shared about the success many have with cilantro, that is probably one reason why I felt my breakout stalling within a few weeks. I never tried Soriatane and read it is Vitamin A used to treat psoriasis, but wow the side effects can be difficult. I do think that Calciptriene Cream did help some, it is a Vitamin D topical also used for psoriosis (which I don't have). Yet until cilantro no big difference in anything I tried.
Would you mind sharing how you know you have GD? Did you have a biopsy?
I also would like to know if you have other forms of eczema? I have 3 and to begin with my dermatologists simply assumed my rash was my Allergic Contact Dermatitis, ACD. My point being this, could you have other forms of eczema? Have you been tested for the allergic form, ACD?

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Replies to "Your post is painful to read because myself and the others on this site feel your..."

Yes, I had a biopsy 3 weeks ago. Path report says only “ Acantholytic dermatitis consistent with Grovers’s disease”.

I have never had skin problems before this. I also have Crohn’s, so the Drs all assumed I was having a reaction to the Remicade infusions that I was on, so I stopped those. Rash continued to spread, so that’s when I had biopsy done.

I am drinking a cilantro smoothie right now😊 Thanks to reading all of the wonderful posts you guys have on here. So glad I found this site.

I think I do need to be checked into further. My dermatologist just pretty much said “ You have Grover’s disease and it is really gonna just suck for you, you just drew a really unlucky straw”. Literally the words out of her mouth. I had never heard of it before and I am an Ultrasound Tech, in Medical field for 29 years.