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DiscussionGrover's Disease: What works to help find relief?
Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)Comment receiving replies
Replies to "I am newly diagnosed with Grover’s. Have had ongoing spreading rash since May. Started on my..."
@pen2015 So very sorry to hear about your situation. Hopefully you will respond to the cilantro smoothies. Give it two months. You have a lot to deal with. Try adding chlorella supplements, in addition to your smoothie. (Purchase on internet) They supposed work well together, both helping with metal detox. I have done both since I began because I was super miserable and was willing to go full blown attack mode. I hate the taste of cilantro but manage to make it palatable with frozen peaches, banana and blueberries, blended with almond milk, sometimes chocolate, sometimes coconut, but always with almond cashew mild, all unsweetened. I buy bags of frozen fruit at Costco. I also freeze the cilantro into single mix portions, stems and all. Makes for an easy breakfast. Stay on this site and let us know how you are doing. You have been dealing with this for 4 months. Also read about wearing cotton next to your skin and eliminating certain foods (whole 30 diet). Give it your best and be patient and know that we are here to support you in your battle.
I was diagnosed in January after biopsies. Started cilantro smoothies daily in February. Rash free in 6 days and now off smoothies. I still mix one up once a week or so just because they are good for your digestive system. Doctors have no idea how to handle Grover’s.
Your post is painful to read because myself and the others on this site feel your pain and misery. How many of us are there? Your case sounds extremely severe. My rash was more traditional- back of upper and lower torso and front and it was miserable enough. Yes cilantro is a "miracle treatment" for me, I will drink it daily for life. Like you steroids did nothing. Please keep up with the cilantro for at least a month since your symptoms are severe, you are in a full blow and active breakout and may take longer to respond. For me I was just beginning a recurrence, only a month into it so when Kimass1 shared about the success many have with cilantro, that is probably one reason why I felt my breakout stalling within a few weeks. I never tried Soriatane and read it is Vitamin A used to treat psoriasis, but wow the side effects can be difficult. I do think that Calciptriene Cream did help some, it is a Vitamin D topical also used for psoriosis (which I don't have). Yet until cilantro no big difference in anything I tried.
Would you mind sharing how you know you have GD? Did you have a biopsy?
I also would like to know if you have other forms of eczema? I have 3 and to begin with my dermatologists simply assumed my rash was my Allergic Contact Dermatitis, ACD. My point being this, could you have other forms of eczema? Have you been tested for the allergic form, ACD?