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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@dazlin

I haven't posted here in a while, but some of you may remember my posts with pictures of my rashes. I'm a patient at Mayo clinic, and had several skin biopsies, with the last results stating, resemblance to Grovers disease. My last terrible bout was 1 yr ago (posted pics then). I was literally sick with chills and fatigue. This year, I'm doing great, with an occasional spotty rash, which I get under control with my prescription cream within 2-3 days...then I stop applying. I just want to mention, after my 5 years of this tormenting rash, I've tried too many alternatives for help, which nothing has worked..too much to mention here, but I have mentioned in past posts, if anyone is interested....home remedies, topicals, diet, and so on. I have also tried cilantro mentioned here...however, I wasn't experiencing anything severe with rashes. I find it baffling that this year, I've changed nothing...I'm outside in Florida heat, walking 2-3 miles, gardening, and more, and I'm doing just fine. I shower sweat off immediately, even 2x daily if needed, and mainly stick with Vanicream soap, moisturizer. No meds, no cilantro, no further changes in diet, an occasional application of prescription cream if needed. I just cant figure...neither can my drs. All said, looking at my past, it's very possible I may experience another severe outbreak...I just wish I knew what causes it. Appreciate the research and experiences here...hoping everyone finds a sure cure!!

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Replies to "I haven't posted here in a while, but some of you may remember my posts with..."

Not sure is lucky is the right word, as you have suffered greatly from GD, but I have read some only have one outbreak, thus the name Transient Acantholytic Dermatitis, TAD, aka Grover's Disease, GD. Auto-immune diseases are confounding, even ones considered incurable. 20 years ago I was diagnosed with CLL, the adult form of leukemia and told the good news was that its progress can be slower than other forms and I had 5-15 years. Without ever having treatment my blood-counts started improving after 12 years and at 15 years I was clear off all the cancerous lymphocytes and all other blood counts normal. No other markers. My oncologist won't say I no longer have the disease, saying there is no cure, so he calls it pre-leukemia. The point is our bodies can surprise us. You give us hope we might also have our GD go dormant or disappear forever. Sounds like you are taking advantage of your healthy skin and able to enjoy your summer.