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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@kimass1

Good Afternoon! ( I have some interesting findings) My red, extremely itchy spots have all gone and faded since I started drinking the cilantro smoothies. However, I still have the hives like rashes that my Dermatologists insist is not part of GD. I did the 5 day (in this case 4 day) extended patch test and my results were negative to all. So at least I know I am not allergic to chemicals present in metals (e.g., nickel), rubber, leather, formaldehyde, lanolin, fragrance, toiletries, hair dyes, medicine, pharmaceutical items, food, drink, preservative, and so on. I also saw an allergist and not allergic to anything he tested either. BUT, I did also go gluten free, dairy free (except some butter) and egg free for the last 3 weeks and the rash has subsided quite a bit. Which is great. So there may be a gut/gluten, dairy connection to these rashes. I also found another support group on FB https://www.facebook.com/groups/2434702380189797/ where others are sharing their stories. I am finding that so many people have different symptoms and different triggers. It's really quite interesting and frustrating at the same time. I am now not so sure that the hives are not a symptom of the GD. A few people in the group also have the hives like rash.....so.... Maybe the Cilantro works on the red itchy bump part of the disease only? Maybe it's just not really working for me the same as it does for others? Who knows? I will keep researching and trying to help figure out this monster of a disease. Hopefully one day a Doctor will care enough to do the same!

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Replies to "Good Afternoon! ( I have some interesting findings) My red, extremely itchy spots have all gone..."

I know the patch test is uncomfortable and expensive but at least you learned you are not allergic to your contacts like I am and many others. You can check this form of eczema off your list. For those of us with eczema learning the name of our type is critical. As you have learned treating GD is unique, just as others have unique treatment. You are thinking this rash may not even be eczema it could be hives and I assume your doctor has ruled out psoriasis. Plus you are right about many of us having atypical symptoms for the same disease. I do know those of us with one autoimmune disease collect others. All of us on this site are researching, trying to learn more about our health issues and you have been instrumental in helping many of us because of your input on cilantro. Thank you for depths of my heart for teaching us about cilantro and drinking my daily smoothie stopped my breakout earlier this spring and I have had a wonderful summer!