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Oral Lichen Planus - my new dental treatment plan...

Posted by fdixon63 @fdixon63, Sep 12 8:05am

I am so frustrated with my current dentist. I am loosing teeth - six in the last year and another currently needs to be pulled - also have a partial they keep having to adjust and/or remake as the anchor teeth are now gone. I requested he refer me to "someone else" either another dentist or maxillofacial specialist, etc. I told him I was willing to travel. He referred me to a periodontist in a larger town 20 miles away. My first visit was yesterday and I'm hopeful. I'd previously been told that my gums and/or bones would not be supportive enough for implants or even dentures. This periodontist said one thing that he feels would work for me is a denture and use perhaps three implants to secure the the denture in place. He wants to first get my OLP in better condition and then do cleanings every 3 months. I'm to use Dexamethasone rinse four times a day. He also agreed that the one tooth that was questionable with the other dentist is loose and needs to come out. Luckily it is not an anchor tooth. Are there any of you that have been in this situation, i.e. have OLP, weak gums and bones that have had dentures with implants? Appreciate the replies.

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fdixon63 | @fdixon63 | Sep 17 6:37pm
In reply to @rashida "@metta and @fdixon63 I have suffered from Lichen Planus for years too. Went from dentist to..." + (show)
@rashida

@metta and @fdixon63 I have suffered from Lichen Planus for years too. Went from dentist to dentist to oral maxillofacial specialist to dermatologists and finally found some relief by going to an oral pathologist who tried rinses, etc. which didn’t work so he prescribed Lyderm gel, which has been the only thing that has worked! It usually clears OLP up in seven days (not to be used long term), but because my mouth was so bad it took ten days.

There is no cure for OLP but for me it is kept in control by using Lyderm gel whenever I have a flare up.

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Thanks metta. I'm glad to discuss Lyderm gel with the "new" dentist/ periodontist but I'm not scheduled to see him again until December. He said my regular dentist can do the next scheduled cleaning and they will do the next one three months later. I can see some "calming" of the LP after six days using dexamethasone mouth rinse and Triamcinolone 0.1% Dental Paste. I'm not sure if it would be very productive to present a change in treatment options just yet, but I'll keep this in mind when my next visit comes up. It won't hurt. Thanks again.

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rashida | @rashida | Sep 17 11:46pm
In reply to @spondee "Would you mind telling us the application instructions recommended by your specialist. I tried a corticosteroid..." + (show)
@spondee

Would you mind telling us the application instructions recommended by your specialist. I tried a corticosteroid too but it didn't help; however, I'm not sure I was using it correctly. I found it really hard to use in the wet environment of the mouth. Thanks!

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@apondee I just squeeze a small drop of the gel on the tip of my finger and rubbed it n my gums - a drop for one side of my mouth and a drop for the other side. Alternately, you could squeeze some gel on a QTip and rub the QTip on your gums and inner cheeks (wherever you have the inflammation). I prefer to use the QTip method of applying the gel.

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gracenad | @gracenad | Sep 21 5:43am

Below you mention MD said take Calcium, did they tell you amount, and fact that you also need high Vitamin D? We also need B6 for mouth health, this can be checked in bloodwork. My Rheumatologist does comprehensive blood work at least 2x a year. I also work with an Epidemiologist, who upped my calcium significantly because although it was on point, parathyroid was a little high and she said my blood was pulling the calcium from my bones. With just several months change my bone density went up. I take 1200mg of calcium daily and eat calcium rich foods, I also take 2000Lu of vitamin D daily.

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1 reply
fdixon63 | @fdixon63 | Sep 23 5:21pm
In reply to @gracenad "Below you mention MD said take Calcium, did they tell you amount, and fact that you..." + (show)
@gracenad

Below you mention MD said take Calcium, did they tell you amount, and fact that you also need high Vitamin D? We also need B6 for mouth health, this can be checked in bloodwork. My Rheumatologist does comprehensive blood work at least 2x a year. I also work with an Epidemiologist, who upped my calcium significantly because although it was on point, parathyroid was a little high and she said my blood was pulling the calcium from my bones. With just several months change my bone density went up. I take 1200mg of calcium daily and eat calcium rich foods, I also take 2000Lu of vitamin D daily.

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gracenad. My MD said to take 1200 mg calcium daily. They did not mention vit D but I know it is necessary for absorption. I'll check my blood work for B6 levels.
I love that OLP has become more recognizable by health care folks. When I first began having problems no one knew what it was. I finally went to a medical school to get a diagnosis. Yesterday I found some good articles and trials on OLP. One was from Brigham and Women's Hospital. Thanks for the good information.

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1 reply
gracenad | @gracenad | Sep 23 8:04pm
In reply to @fdixon63 "gracenad. My MD said to take 1200 mg calcium daily. They did not mention vit D..." + (show)
@fdixon63

gracenad. My MD said to take 1200 mg calcium daily. They did not mention vit D but I know it is necessary for absorption. I'll check my blood work for B6 levels.
I love that OLP has become more recognizable by health care folks. When I first began having problems no one knew what it was. I finally went to a medical school to get a diagnosis. Yesterday I found some good articles and trials on OLP. One was from Brigham and Women's Hospital. Thanks for the good information.

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fdixon63

Are you in MA? I get all my healthcare at Brigham, superb care.

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1 reply
fdixon63 | @fdixon63 | Sep 24 1:49pm
In reply to @gracenad "fdixon63 Are you in MA? I get all my healthcare at Brigham, superb care." + (show)
@gracenad

fdixon63

Are you in MA? I get all my healthcare at Brigham, superb care.

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gracenad. No I'm not in MA. Glad you're pleased with Brigham.

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annie104 | @annie104 | Oct 2 5:52pm

I was experiencing loose teeth, especially molars, had a couple out and then started my own research as dental advice wasn’t working for me and was very costly .
After completing normal oral hygiene 3 times per day ( clean teeth mouth , tongue with toothpaste and gargle with listetine then rinse with water . )
I then ( with an electric toothbrush applied organic coconut oil to teeth and gums gently for several minutes . Afterwards , do not rinse just spit) do this at least twice per day and must be constant for life . . Overtime my loose teeth became more secure and my mouth healthy . Also alternate coconut oil to olive oil one day per week . It works for me 🙌

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jalice | @jalice | Oct 3 2:02pm

My teeth are worse. Just had two more pulled. One implant covered over before the tooth could be put in. No suggestions or anything to do. I’m at a loss along with my teeth.

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3 replies
Mentor
Becky, Volunteer Mentor | @becsbuddy | Oct 3 2:55pm
In reply to @jalice "My teeth are worse. Just had two more pulled. One implant covered over before the tooth..." + (show)
@jalice

My teeth are worse. Just had two more pulled. One implant covered over before the tooth could be put in. No suggestions or anything to do. I’m at a loss along with my teeth.

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@jalice Losing your teeth is a real problem in many ways! Does your dentist have you on a treatment plan? Tell me about it about it! Has the dentist treated OLP before?

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