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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Nov 4 2:57pm | Replies (2012)

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@aprilfool

It seems many of us have secondary skin issues in addition to the Grover's diagnosis. I suspect I may be in the same boat. In my late 20's-early 30's, I would get hives every time I took a hot shower, but that was so different. These were big welts, all over my torso, front and back. Nobody every figured out why and they mysteriously went away. Now, 15 years later, this pops up and is possibly also related to heat and/or sweat. Have any of you seen an endocrinologist and had a thorough work-up? My derm thinks that's going to be my next step if this week's blood/urine tests don't show anything abnormal. Also, (just venting here), I find it discouraging how outdated the research is considering how many people this affects (compared to the 70's) and how uncomfortable it can make us. I still have half my life ahead of me and may have to deal with this for all of it? Someone please study this further!

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Replies to "It seems many of us have secondary skin issues in addition to the Grover's diagnosis. I..."

I believe the lack of research concerning eczema is that although at times we wish we were dead, it doesn't kill us. Yet the focus for much research is about childhood diseases which often Atopic is and it is Atopic with the big Dupixent breakthrough that helps some.
I do know most of us with Grover's have other auto-immune disease issues complicating everything; I used to have Leukemia.

I have a call in to an endocrinologist - she's supposed to be the best in town, so I have to wait a little while to get in. I'll keep you posted.