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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)

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@kimass1

@aprilfool As you may have read, I also have a rash that does not present like Grover's (those red itchy Grover's bumps have gone with the Cilantro) However, My initial rash started on my head and I did have what looked like a hive(ish) rash that accompanied the Grover's as it progressed. All of the rashes left me for about a month or two (with the exception of the itchy bumps on my head) after starting the cilantro. However, the hive like rash re- appeared. It started really small and gradually built up to where it bothers me quite a bit now. It travels. Some days on lower legs, others on upper thigh and buttocks, others on back and arms AND I would also get itching on my palms. I could see tiny little bumps on my palms (no color) that itched like crazy. My chest and neck also get red and it feels like it's on fire, and I get almost a blister like outbreak. It's weird! I have been trying to figure this rash out for a little while now. Derms have no idea, and say it does not present like Grover's, but since I was diagnosed with Grover's through a biopsy, some think it still may be just that. Others think it's another form of eczema others thought it was hives. So I have no REAL diagnosis for this issue. Just Doctors throwing Prednisone at me and shooing me away. I thought it was an allergic reaction to the yogurt I added to my smoothies because it got better (almost gone as soon as I stopped using the yogurt.) But the last two days it has come back strong! I have not done the 5 day extended patch test because my derms don't offer it and from what I am told it costs over $1000, so I have put it off. I have NEVER been allergic to anything prior to this and I never had issues with rashes before last September when this all started. (I will be 56 in October.) I am going to set up an appointment with the Mayo Clinic next. I have to drive about 5 hours to get there, so it may be a while before I can get in. Until then I am going to keep trying to figure this thing out.

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Replies to "@aprilfool As you may have read, I also have a rash that does not present like..."

Dear kimass1- you have got to figure out how to get the 5 Day Extended Patch Test. You have learned only a few derms or allergists are licensed in any area to perform the test. Get in to see one and see if you can work out a payment plan or a discount. Ask you derm for reference to a testing doctor. If they don't know one, run the other way, this doctor doesn't want you tested and wants to keep you as a patient. I think that is what happened to me for 10 years. I wasn't even told about this test. My derms advice as to stop washing my hands. EGAD. I can wash my hands, I simply needed a soap free from my allergens. Try contacting the True Test Kit company as they may have a list of licensed doctors in your area. Both derms and allergists test for this. I saw an allergist as the wait time was less.
With Allergic Contact Dermatitis, ACD, which each additional contact with an allergen your body will not get used it instead your reaction time will lessen and will become more severe and it is for life. I muddled along for 10 years with hand and scalp eczema only using the go to doctors prescription of steroids until my entire body was on fire. I was toxic from my exposure to allergens It began to react inside my skin, burning, stinging, itching. Sleep was impossible. If you have this form the sooner you find out the sooner you can get your life back. You know I have both GD and ACD and autoimmune diseases collect in our bodies if we are prone to them. There is no reason to believe you don't have both of these forms until your get tested. You can never guess all your allergens. I was allergic to elements I didn't even know cause allergies.

Why don't they just do a biopsy?