1. < Post-COVID Recovery & COVID-19

Rest: How do you use rest during the day?

Posted by mclelland1958 @mclelland1958, Sep 30 9:39am

I am hoping that someone will explain how they use rest during the day? I don’t think I am incorporating rest where it is needed. I am new to long covid and need a game plan. Can any of you describe what you do when you are doing an activity and feel your symptoms start kicking in?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

kellysmail2016 | @kellysmail2016 | Oct 2 2:14am
In reply to @lorivwebb "Let’s connect and I’ll tell you some of the blood markers I’m now seeing progressing rheumatoid..." + (show)
@lorivwebb

Let’s connect and I’ll tell you some of the blood markers I’m now seeing progressing rheumatoid arthritis, just like the article says. I’m so glad you shared that!

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Hey Lori, I’m just seeing this at 3:10am. My sleep schedule WAY OFF. The can’t work anymore drives me nuts so while I’m not able to sleep I read a lot on this stuff. I’ll text you when I get up. Putting your number in now so I don’t have to find it in a tread tomorrow. Boston area. Cold coming soon enough!!

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kellysmail2016 | @kellysmail2016 | Oct 2 2:29am
In reply to @lorivwebb "Kelly- can you send a different link to the video? I can’t get this to work...." + (show)
@lorivwebb

Kelly- can you send a different link to the video? I can’t get this to work. It sounds like we are very similar and I’ve read the article you shared like x3 times. It’s exactly what’s happening to me. I believe I have blood and neuro inflammation. I’m not sure if I can give you my number to text o. Here but let’s try

I’m actually at the Mayo rn by chance do I’ll bring this up to the doc I’m seeing. Lmk if I can ask him anything from what ur dealing with. I also have the zero energy for anything in life. Ugh. It’s been awful.

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See if this works Lori. Sent another on a different tread. It keeps kicking me off on my phone when I look for posts I saved. No worries. I get it to you now. lol.

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friedrich | @friedrich | Oct 2 9:10am
In reply to @kellysmail2016 "https://www.npr.org/sections/health-shots/2024/01/09/1223077307/long-covid-exercise-post-exertional-malaise-mitochondria Here is another." + (show)

Thank you for the link to the NPR article on PEM. I feel much better knowing the likely muscle-cell cause of my PEM. I’ll save the article for future re-reading.

I hope to participate in the upcoming RECOVER-ENERGIZE clinical trial of “Pacing” as a way for people with PEM to manage it. There will be 40+ study sites across the country. Recruiting has begun. People can find out more about it online.

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2 replies
lorivwebb | @lorivwebb | Oct 2 10:30am
In reply to @kellysmail2016 "Hey Lori, I’m just seeing this at 3:10am. My sleep schedule WAY OFF. The can’t work..." + (show)
@kellysmail2016

Hey Lori, I’m just seeing this at 3:10am. My sleep schedule WAY OFF. The can’t work anymore drives me nuts so while I’m not able to sleep I read a lot on this stuff. I’ll text you when I get up. Putting your number in now so I don’t have to find it in a tread tomorrow. Boston area. Cold coming soon enough!!

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NP. I understand and I’m in the exact same boat as you. Type A people should not be forced to live this way. It’s horrible.

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kellysmail2016 | @kellysmail2016 | Oct 2 8:16pm
In reply to @friedrich "Thank you for the link to the NPR article on PEM. I feel much better knowing..." + (show)
@friedrich

Thank you for the link to the NPR article on PEM. I feel much better knowing the likely muscle-cell cause of my PEM. I’ll save the article for future re-reading.

I hope to participate in the upcoming RECOVER-ENERGIZE clinical trial of “Pacing” as a way for people with PEM to manage it. There will be 40+ study sites across the country. Recruiting has begun. People can find out more about it online.

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Was this in my article? I too have PEM. RECOVER-ENERGIZE Clinical trail??? How did you hear of this?

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kellysmail2016 | @kellysmail2016 | Oct 2 8:24pm
In reply to @friedrich "Thank you for the link to the NPR article on PEM. I feel much better knowing..." + (show)
@friedrich

Thank you for the link to the NPR article on PEM. I feel much better knowing the likely muscle-cell cause of my PEM. I’ll save the article for future re-reading.

I hope to participate in the upcoming RECOVER-ENERGIZE clinical trial of “Pacing” as a way for people with PEM to manage it. There will be 40+ study sites across the country. Recruiting has begun. People can find out more about it online.

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Just looked it up. I see. Not sure where you saw the locations. I’d love to sign up.

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friedrich | @friedrich | Oct 3 9:26am
In reply to @kellysmail2016 "Was this in my article? I too have PEM. RECOVER-ENERGIZE Clinical trail??? How did you hear..." + (show)
@kellysmail2016

Was this in my article? I too have PEM. RECOVER-ENERGIZE Clinical trail??? How did you hear of this?

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You can learn about the overall RECOVER program of Covid research at:
recovercovid.org
You can learn about the RECOVER clinical trials program at
trials.recovercovid.org
You can learn about the specifics of the RECOVER-ENERGIZE clinical trials, including locations, at:
https://clinicaltrials.gov/study/NCT06404073?cond=Long%20COVID&intr=Pacing&rank=1#study-overview

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1 reply
friedrich | @friedrich | Oct 3 9:43am
In reply to @friedrich "You can learn about the overall RECOVER program of Covid research at: recovercovid.org You can learn..." + (show)
@friedrich

You can learn about the overall RECOVER program of Covid research at:
recovercovid.org
You can learn about the RECOVER clinical trials program at
trials.recovercovid.org
You can learn about the specifics of the RECOVER-ENERGIZE clinical trials, including locations, at:
https://clinicaltrials.gov/study/NCT06404073?cond=Long%20COVID&intr=Pacing&rank=1#study-overview

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*** Here is a Better Link to get to a list of all 40 of the RECOVER-
ENERGIZE clinical trial locations:
https://clinicaltrials.gov/study/NCT06404047?cond=Long%20COVID&locStr=Illinois&country=United%20States&state=Illinois&rank=5#locations

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 4 8:16pm

@mclelland1958, your question reminded me of the Spoon Theory.
- How do you plan your day and conserve energy? Are you a Spoonie?
https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/
Have you heard of this method of understanding pacing?

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