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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)Comment receiving replies
Hi everyone. I am new to this forum. About a month ago I was diagnosed (after punch biopsy) with “probably” Grovers disease. I love that word probably. Mine started on my ear and quickly went to the back of my head. Went to the dermatologist no biopsy yet who gave me fluticasone cream for body and clobetesol topical solution for my head. Then it showed up On the top of my leg. I used the creams for a few weeks never really helping and then the bloom appeared on my back and on my chest. That’s when I had the biopsy’s.
I then received a prescription of halobetasol ointment. All these chemicals being rubbed into my skin. Did the 6 day steroid pack, felt a bit better. Came back with a vengeance. Now I’m on minocycline which is helping a great deal.its been 2 weeks and my Rx is for 3 months. I use charcoal soap, Sarna cream and Gold Bond exema cream. Last October I had an allergic reaction to a med which was an NSAID that sent me to ER. Reveived a shot of solumedrol. About 2 weeks later I began with hives. And boy I do mean hives. They were huge. Allergist gave me antihistamines. It was a tough winter for me. I had 2 colds and then bronchitis. The reason I’m telling you this is because I had a low grade temperature for months. I wonder if this caused the breakdown of my skin. Daily I feel very warm then I get a chill (way beyond menopause).
My new normal consists of a plethora of antihistamines and creams. A fan above me and one beside my bed. No underwear or bra as often as I can and alot of cotton. Would love to try the cilantro but I have a clotting factor so too much would not be good for me.
Thanks for reading.
Replies to "Hi everyone. I am new to this forum. About a month ago I was diagnosed (after..."
I personally haven't read about Grover's in the locations you have mentioned. Perhaps you have another form or forms of eczema. Go to dermnetnz.org and go to their eczema site and search though all the forms of eczema. Look at the photos of Grover's, it truly seems yours doesn't fit the profile. Yet as I have 3 forms, with Grover's as one, you could have other forms of eczema which is not uncommon.
Until my cilantro smoothies, daily, no PX treatment helped me. An outbreak had to run it's course. My first outbreak lasted 1 year and then subsequent outbreaks were less severe (still miserable) but timing was 6 months on and 6 months off. One month into my latest outbreak beginning in mid Feb this year, I read about cilantro on this site, started a daily smoothy and within a week it stopped progressing and slowly started healing. Now 4 months later the last scabs are almost all gone, yet after the first week on treatment the itching was lessened and after a month almost gone. Yet it was in the beginning stage of an outbreak. Best of all with cilantro I never got the deep pain.
So do your homework with dermnetnz.org, study Grover's and other forms that have rashes that look like yours (great photos on this site) and unless you have a reason why cilantro won't work for you, just do it and chug it down.
Read this discussion since the beginning and learn how much we use, how often to drink it, tips on storing it and so on.
Also go to earthclinic and read about cilantro for Grover's. From what I have read from other bloggers with Grover's, about 50% or more of us are helped. Frogger and I are 2 of the lucky ones. Also have read cilantro is a heavy metal detox, but still have no idea why it has helped me so much.
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My experience is almost the same as yours. I believe mine was brought on by the shingles vaccine.
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I recommend a biopsy for Grover’s. My dermatologist said only way to find out. Only after biopsy did I begin my treatment. And cilantro is ONLY thing that will stop the horrible itch and outbreak. There’s a lot on here about cilantro. I doubted it until I started and now am a believer.