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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)

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@kako

I forgot to mention that I was told by my dermatologist that this disease is extremely hard to treat. She wanted to see if I would try accutane but I am against this because of the serious health risks with this acne medication. Has anyone tried this? Has this worked for anyone? I would do it if I knew the rash would not come back. I’m desperately looking for answers without any luck so far. I’ve read this entire strand of messages and even tried a few treatments from what I’ve read. I have noticed that in the summer my rash seems to get better. I am afraid to let my body have any sun on it since I think this was caused by sunburns in the first place. My dermatologist also suggested light therapy, but I from what I’ve read the relief is only temporary.

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Replies to "I forgot to mention that I was told by my dermatologist that this disease is extremely..."

Kako, i can't help with Darier at all. @gardeningjunkie seems to know a lot about different sorts of skin issues so hopefully she can weigh in. As it relates to Grover's disease, i shared in a prior message what my whole crazy regimen is. Combination of OTC products as well as prescription. While i have the rash, it's not that bad - but i do have itchiness all over my torso and neck - which my approach seems to help with (at least between applications of all the creams and lotions). The only "cure" i have read here is what was posted last week about taking cilantro. Only time i have read that people have seen something that looks like remission. Of course Grover's tends to go away and come back, but the cilantro story was appealing to me that i started taking cilantro extract two days ago. It's not the most pleasant taking stuff but i am going to stick with it as my travel schedule is not going to support me carrying around bunches of the real stuff to eat everyday. Oh, related to sun - my dermatologist told me that sun was great for it - when i went away to the Caribbean i did notice a lot less itching (of course, i wasn't wearing much clothing most of the time so there is that). But i bet your normal disposition to the sun as well as whether sweating bothers your particular situation is going to be more relevant. I have to stay away from accutane - sensitive liver and frankly i guess i would rather be itchy than dealing with a problem liver. But that's me - see what others say about it - i have read it does work to reduce the rash as does light treatments (see point about the SUN above) but each has its own challenges.

Good luck.