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Grover's Disease: What works to help find relief?

Skin Health | Last Active: 2 days ago | Replies (1949)

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@kako

I was diagnosed with Grover disease or Darier disease but they weren’t sure which one. My symptoms all point to Grover’s and not darriers. I have no heard of one person who has totally found a cure for this. I have tried so many things such as vitamin a supplements, deodorant on skin, topical steroids, and vitamin d3. Nothings has worked for me. I’m a 30 year old female who has been badly burned many times in my life. My problem is the worst on my stomach and if I’m having a horrible break out it will spread to my back. I can’t use lotion or any soaps without my rash worsening? If anyone has found a cure for this please respond to me and tell me what worked for you. Thank you!!

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I forgot to mention that I was told by my dermatologist that this disease is extremely hard to treat. She wanted to see if I would try accutane but I am against this because of the serious health risks with this acne medication. Has anyone tried this? Has this worked for anyone? I would do it if I knew the rash would not come back. I’m desperately looking for answers without any luck so far. I’ve read this entire strand of messages and even tried a few treatments from what I’ve read. I have noticed that in the summer my rash seems to get better. I am afraid to let my body have any sun on it since I think this was caused by sunburns in the first place. My dermatologist also suggested light therapy, but I from what I’ve read the relief is only temporary.

@kako Try Cilantro! It can't hurt - One whole bunch per day. Try it for at least a month and see if you find relief. I was skeptical. My Grover's was SEVERE and now it's like 99.9% gone. I was ready to go on accutane too. I was desperate and at my wits end until I found others who had success with the cilantro and decided I had nothing to lose.