Grover's Disease: What works to help find relief?

You're right about being confused about the title of our Grover's Disease, GD, aka, Transient Acantholytic Dermatosis, TAD. We all know the dermatosis refers to skin disease. The Acantholytic refers to the loss of inter-cellular connections. Yet for most of us it's chronic and just like you I think the transient must refer to the repeated nature of the break outs. It seems once our cellular structure has changed permanent damage has been done. I know even during clear periods I always feel tiny bumps under my skin, much like the size of a grain of sand. Once the active stage start these bumps enlarge and you know the rest.

I also have GD all over my torso and back. I have even had spots on my ams and Iegs. It is completely miserable.

I had a biopsy one year ago when I only had the red spots with no itching. It is now back with extreme itching. Any pressure applied to the areas produces a prickly sensation. Should have ask my doc for a second biopsy??

I am so sorry. Mine just seems to stay. I would see a dermatologist though. When I touch spots I actually get that same prickly sensation. It is such a miserable experience.

I have seen 2 dermatologists about this. I have just recently started phototherapy. Do you have the prickly sensation in areas that have no red spots? I have this sensation on my arms where there are very few spots.

@packer2. My first onset had almost like a nerve pain - and was in spots where I couldn’t see any bumps. I thought it was shingles at first. My second flare up did not have that same sensation, but I did get a secondary yeast infection with my second bout. I thought I was going to scratch my skin off. After the yeast cleared up, it’s just bumps with less symptoms. They never go away completely and feel bumpy. I was just persistent in contacting my dermatologist as things changed, and he has been great. Anytime you have open skin, you are subject to secondary problems. Hope that helps!

Does anyone have the spots that are like small waterblisters which pop very easily and then sting and feel prickly. It is not a typical itch. More like prickly and sore. Feels almost like a sunburn after they are popped.

I did forget to mention that recently I had a positive Ana test. When further testing for specific autoimmune diseases; all of these tests were negative. Any thoughts?

Mine look like pimples and red bumps. They heal and I can see spots where they were. The problem is new ones just pop up after old ones clear.

I would get a second Dermo opinion.