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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Nov 4 2:57pm | Replies (2012)

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@packer2

I had a biopsy one year ago when I only had the red spots with no itching. It is now back with extreme itching. Any pressure applied to the areas produces a prickly sensation. Should have ask my doc for a second biopsy??

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Replies to "I had a biopsy one year ago when I only had the red spots with no..."

I am so sorry. Mine just seems to stay. I would see a dermatologist though. When I touch spots I actually get that same prickly sensation. It is such a miserable experience.

I would get a second Dermo opinion.

Sounds familiar except I’ve been told for years that my itchy bumps were just a contact dermatitis. Wasn’t until I spent a spring in hot humid Hawaii then went to the hot dry SW for 3 weeks of hiking and finally landed in Colorado where my red bumps were profusely spread over my trunk and spreading to arms and legs. I was miserable! Once home I saw my dermatologist and she found a “newer” lesion that clearly showed Grover’s and not just inflamed cells. It’s been 9 months since the start of this extreme flare; after 3 months of phototherapy 2-3x/week and Triamcinolone dabbed on hot spots, along with Luke warm soda water soaks 2x/wk, no vigorous exercise and cold packs to the itching burning areas in the evening, I’m seeing light at the end of the tunnel. For me, I had to stop use of all commercial lotions and use straight up coconut oil to moisturize 2x/day. Messy but it’s the only product that does not burn. I also undertook a 30 day elimination type eating plan (Whole 30) to reduce systemic inflammation. I truly felt better doing this; and have noticed increase in “flares” as I’ve reintroduced the foods I’d eliminated. Seems as I get to higher dosing in my UVB phototherapy I’m having more “flares.” Has anyone else experienced this?