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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@gardeningjunkie

We have to count ourselves lucky that our GD rash can be hidden. I am now up to 3 forms of eczema and the only outbreak I ever had that showed was Perioral eczema which is a rash around the mouth. Yet, there are treatments which worked for me within weeks of the correct diagnosis. I even self diagnosed myself because of dermnetnz, org having so much info of types of eczema. My derm had been treating it as ACD and these treatments actually were feeding the Perioral; the steroid makes it more active. Having a visible rash is a humbling experience and if nothing else we learn sympathy for others dealing with this problem.
I know GD is a miserable disease and for most it is chronic. It is an autoimmune disease and if you have one you are likely to develop other autoimmune diseases. Yet jpearo life is precious. If you can block the pain with a good TV show or book or another hobby you enjoy it does help. Still when the breakout is severe I couldn't lay on my back in a bed to read or back in a chair, only lay on my side. I did a lot of standing. Also you have the hope that better days are around the corner and like me you will have months of normal skin. Having survived leukemia I already completed my bucket list years ago and now am joyously happy everyday I feel great and don't waste a minute. It's tough for you because you are young and I didn't get it until I was 66.
You don't have Allergic Contact Dermatitis, ACD, like I have which limits grooming products, but still you don't need to stress your skin. Order some Grandma's Bar Soap for face and body on Amazon. Now it's a Mayo Skinsafe product. It's just 2 ingredients, very moisturizing. Lye and lard. Yes lye doesn't sound safe, but during the soap building process, just like our ancestors did for the ages, the lye is converted into glycerin. The lard is moisturizing and the glycerin is not only moisturizing but allows some skin penetration. Also never sleep on a mattress or pillow with memory foam. Regular polyurethane foam is ok. Memory foam is processed with chemicals and elements from rubber and these element off gas though our weakened skin barrier on our torso causing raised histamines in many, me for one. Also make sure your sheets and towels are 100% cotton, also true of your shirts. Blended materials are processed with rubber chemicals. Yes these a baby steps, but can keep you hopeful.

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Replies to "We have to count ourselves lucky that our GD rash can be hidden. I am now..."

Thank you so much for the advice. It is nice to talk to people who get how bad this sucks. Other people just shrug it off and tell me to chill out that it’s just a rash.