Grover's Disease: What works to help find relief?

A link to Grover's. Perhaps it is just genetic like many believe the most common form of eczema is- Atopic. The majority are born with it. These unfortunate eczema sufferers have to with eczema all their lives. So very difficult.

One theory about GD is that most seem to have spent time outdoors with lots of sun exposure. It's more prevalent in men, especially those that worked outdoors. Most get later it life (though not all) as if it took time for the sun damage to take affect.

Yes I spend lots of time in the sun growing up and living at the beach and still to this day involved with boating and outdoor activities. I can remember every summer our backs would burn, our parents would put white vinegar on to help cool the burn. After several burns and peels we would not long burn, even if swimming in the ocean all day. So in my case that could be a reason. Yet I know others who have spent as much or more time in the sun than me without getting GD, so back to the genetic tendency idea.

So sorry to hear about your GD diagnosis. Our MD prescribed steroid based cream and ointment, and we supplement with Gold Bond anti-itch and eczema lotions. My wife initially had outbreaks in breast area, and now has spread to other parts of body- I sincerely hope yours stays confined to the one area. Another possible treatment that may be the best is UV light treatment- after 10-12 treatments it is significantly abated if not gone.

My wife and I contracted GD from some external unknown source, and has confounded 3 different Dermatologist. We are scheduling the light treatment in the coming weeks.

Light therapy significantly helped me. But its not for everyone, but try it.

Hello. I have done light therapy several times. It does help most of the time tho I can continue to have breakouts as it goes along.

I have had GD for over 5 years now on my chest. First dermatologist prescribed Salex cream (6% salicylic acid) and also used OTC hydrocortisone 1% cream & gel. keeps itch under some control but virtually no help. Went on with this therapy for 4 years until I finally decided I need some more professional help. The new Doctor tried many things, Hydrocortisone 2.5%, then Triamcinolone Acetonide 0.1% lotion with tetracycline pills, no help. Fluocinonide cream 0.05% and cortisone shot, only slight help but not much. Calcipotriene cream 0.005%, this made it way worse. Then tried Impoyz clobetasol propionate 0.025%, this seemed to help the most after a week but never fully went away, and you can only use this cream for two weeks maximum at a time. During two weeks off it comes right back again. Then I tried Eucrisa 2% for about a month, started getting worse (even used with occaisional Impoyz too every third day). He also started the light box at his office - needs to be approved by insurance. Now he put me back on Sorilux calcipotriene foam 0.005%, he said the foam delivery might make a difference. So far it's getting much worse after a week but I've read somewhere that it may do this before starting to get better. We are going to start a course of Isotretinoin pills in a couple weeks. Those pills successfully eliminated my acne in my late 20's. I am now 57, male.

Have you tried light therapy? It helped me in a big way.

Hello everyone. I was also diagnosed with Gd 2 weeks ago but have been miserably symptomatic for 4 months. So far the hydrocortisone and triamcinolone Rx along with steroid shots have provided limited relief. We thought it might be a reaction to the biological infusion I'm on for RA. Right before this started I went on a low carb diet mainly to cut out most of the sugar in my diet. Makes me wonder if there is any connection since I've had such a sweet tooth my entire life. I am happy to have found this site since this is all so new (and awful) and look forward to learning from all of you. Again nothing has really helped so far.

I’m very sorry to hear you are miserable. I certainly wish there was a quick fix for this. Mine came out of nowhere as well last summer. My recent outbreak was complicated but a secondary yeast infection. So my dermatologist treated me orally and topically for that in addition to the topical steroid. Once the yeast cleared up, the extreme itching and pain was much improved. Not sure if that is helpful.

I was prescribed steroid cream applied then wet wraps. I sometimes get it all over my body, so after cream applied, I wet a cotton t shirt, and leggings, wring out until just damp, and stay in them for 1 hour..3x daily. ..Dr prescribed. Not the most comfortable, but very relieving. I wear my husband's big terry robe over, as the wet wraps get cold. Also take Hydroxyzine and allergy pills when needed. My drs from Mayo clinic are adamant about gentle skincare, using only Vanicream bar soap, and body cream. Absolutely No hot showers. Diet is not my trigger point. In my case, its possibly blood condition related. Heat, and sweating may trigger an outbreak for me...yet sometimes it doesn't. I get more of a horribly itchy, blistering rash. Last full outbreak was soooo widespread, I felt sick with chills and exhaustion. My meds do help with symptoms, not a cure. Hope you get help!!!

Was the yeast on your skin? Just curious because we got thrush out of nowhere last year and other odd things...