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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)Comment receiving replies
I have had GD for over 5 years now on my chest. First dermatologist prescribed Salex cream (6% salicylic acid) and also used OTC hydrocortisone 1% cream & gel. keeps itch under some control but virtually no help. Went on with this therapy for 4 years until I finally decided I need some more professional help. The new Doctor tried many things, Hydrocortisone 2.5%, then Triamcinolone Acetonide 0.1% lotion with tetracycline pills, no help. Fluocinonide cream 0.05% and cortisone shot, only slight help but not much. Calcipotriene cream 0.005%, this made it way worse. Then tried Impoyz clobetasol propionate 0.025%, this seemed to help the most after a week but never fully went away, and you can only use this cream for two weeks maximum at a time. During two weeks off it comes right back again. Then I tried Eucrisa 2% for about a month, started getting worse (even used with occaisional Impoyz too every third day). He also started the light box at his office - needs to be approved by insurance. Now he put me back on Sorilux calcipotriene foam 0.005%, he said the foam delivery might make a difference. So far it's getting much worse after a week but I've read somewhere that it may do this before starting to get better. We are going to start a course of Isotretinoin pills in a couple weeks. Those pills successfully eliminated my acne in my late 20's. I am now 57, male.
Replies to "I have had GD for over 5 years now on my chest. First dermatologist prescribed Salex..."
Doctor has now changed course of action once more. After the Calcipotriene Foam exacerbated the problem times 3 (for the second time - like once wasn't enough?), now I'm on Triamcinolone Acetonide again however a weaker dose of 0.025% instead of the usual 0.1% for two weeks. Then alternating ELIDEL (pimecrolimus) Cream 1% 5 days per week and the Triamcinolone 2 days per week from then on. We will then start a course of Isotretinoin after the required two week waiting period. So far the Triamcinolone has relieved the havoc of the Calcipotriene. Wondeing if I may be one out of every 300 people that has a Vitamin D allergy? (Used Walgreen's only coupon for non-generic Elidel $40 instead of Generic one at CVS for $160 - after Dr. re-approval for non-generic at my request. Generic at Walgreen's was $106. Amazing how they try to sell you the generic for much more!)
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I was prescribed steroid cream applied then wet wraps. I sometimes get it all over my body, so after cream applied, I wet a cotton t shirt, and leggings, wring out until just damp, and stay in them for 1 hour..3x daily. ..Dr prescribed. Not the most comfortable, but very relieving. I wear my husband's big terry robe over, as the wet wraps get cold. Also take Hydroxyzine and allergy pills when needed. My drs from Mayo clinic are adamant about gentle skincare, using only Vanicream bar soap, and body cream. Absolutely No hot showers. Diet is not my trigger point. In my case, its possibly blood condition related. Heat, and sweating may trigger an outbreak for me...yet sometimes it doesn't. I get more of a horribly itchy, blistering rash. Last full outbreak was soooo widespread, I felt sick with chills and exhaustion. My meds do help with symptoms, not a cure. Hope you get help!!!