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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Nov 4 2:57pm | Replies (2012)Comment receiving replies
Normally Grover's doesn't manifest on legs. It is normally limited to torso but some cases have it extend to neck and down the upper arm. I looked at your profile and didn't learn if you have other forms of eczema. I have 3 different forms of eczema, Grover's is just one form. Have you been tested for Allergic Contact Dermatitis, ACD? Forgive me if I have already asked this. Your leg papules may be a form different than Grover's. ACD is related to allergic contacts like metals, dyes, preservatives, rubber elements and so on. Yet, your water filled blisters have me baffled, but for sure there is a reason. Could be related to none of the above. I did see on your profile an interest in blood cancers. I have or hopefully had leukemia, my chronic form, Adult Leukemia, CLL, after watching blood counts for 15 years it just started disappearing on it's own about 3-4 years ago. One of the 5 or 6 commonalities in Grover's is blood cancer like leukemia or lymphoma. I am wondering if your doctors want you to wear white cotton because it is dye free? The Cottonique clothing is not white, but the natural color, an off white, never dyed. The White Cotton Gown is bleached, but has never bothered my skin. I think they sell pj's, but I don't like the feel of anything around my waist when I sleep. A white t-shirt is a great substitute as a nightgown just make sure it is 100% cotton. I think Stafford from JC Penny's makes the softest and strongest.
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@gardeningjunkie ...haven't been tested for specific allergies, just prick test for environment, but previous biopsies showed hypersensitivity and a mix of cells that come with inflammation. This last bout of rashes has been the most severe along with feeling ill. Comes and goes on its own. Now this recent biopsy shows Grovers, with an already fading rash, but dr still wants a fresh biopsy of active rash. Dilemma to get me in on time. As for the suggestion on white cotton, that's only for times when I need a wet wrap. The garments get soaked in water, then rung out till damp. I apply steroid cream, then put the damp garments on. Of course they get cool, and its kinda icky, but I then put on my husband's big Terry robe over so I can at least sit on the couch, and stay comfortable . I'll say the coolness of the wet teeshirt actually felt relieving on the severe rash on my abdomen and back. Dr wanted me to do this 3x daily for 60 minutes. But, I only did it a couple of times since it was already on it's way out. About my blood condition...its a low grade MGUS. Very strange because I noticed a fatigue and body aches, hoarseness of my voice a couple months before, (happened many times over last 2years) and now my #'s on blood test have creeped up a bit. Nothing alarming, just needs monitoring. I dont think drs agree there's a connection to how I feel, but possibly, maybe can cause this rash.?? Yet, I know for a fact, those physical feelings that come over me, are NOT my normal. Even when I don't have the rash, I'm experiencing these symptoms. I'll go about my usual busy day, and then it just hits...I cant go anymore, start feeling real achy and super tired, my voice even gets weak. When I'm in this mode, could come and go over several months, I actually worry about entertaining and going out with friends...just not sure if I'll hold up. I know I covered alot here...hope I'm not getting confusing
Thanks so much for your informative replies!!