1. < Polymyalgia Rheumatica (PMR)

PMR and prednisone

Posted by gramsof6 @gramsof6, Sep 19 12:47am

I was diagnosed in April with PMR. Because it was mainly in my shoulders I saw an orthopedic surgeon who put me on an inflammatory. Shortly there after I had an appointment with my rheumatologist and diagnosed me promptly.
He started me on 5mg 2 to 3 a day of prednisone.
The problem is I am a diabetic but was only on metformin. Now I am using small doses of insulin. What I don't understand, did you stay on a consistent everyday?
On days I feel great I avoid taking my prednisone. Recently my pain is now in my thighs which is affecting my ability to walk. I have a granddaughter that plays college soccer, 2 granddaughters that play high school varsity soccer and we attend high school football games. This means that at least 4 times a week I am climbing bleachers. I believe this is a contributing factor to the thigh pain. I am OCD about my house, enjoy cooking and canning and I am also a quilter. I am finding these activities difficult too. I am really confused about the proper way I should be taking my prednisone. My rheumatologist is aware that I am concerned about my sugar and has not established a definite guide line for taking the prednisone. I use infrared heat, supplements, oils and Voltaren
I would appreciate any suggestions. I did receive a steroid injection in one arm because the bursa was so inflamed it caused a large painful bump. Has anyone tried physical therapy or massages? Today was horrible and I retreated to bed. I am so glad I found this group and am looking forward to any suggestions. We are planning a trip to Gatlinburg and would enjoy hiking. Thank you, Deb from Ohio

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Mentor
John, Volunteer Mentor | @johnbishop | Sep 24 10:30am
In reply to @bostonredsox1945 "Has ant doctor for PMR recommended cannabinoids and removing Prednisone?" + (show)
@bostonredsox1945

Has ant doctor for PMR recommended cannabinoids and removing Prednisone?

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I’ve never heard of a doctor or rheumatologist using or recommending a cannabinoid as a replacement treatment but maybe others might have experience. Doesn’t make any sense to me. I can see where it may help with pain but not with inflammation or returning you to normal.

REPLY
gramsof6 | @gramsof6 | Sep 24 11:19am
In reply to @oldbtstlshrp2 "Out of curiosity; do you still have all the side effects of the Prednisone daily? Have..." + (show)
@oldbtstlshrp2

Out of curiosity; do you still have all the side effects of the Prednisone daily? Have you learned or been able to train your body & mind to bypass the side effects and be functional? I have managed to accomplish that feat with my chemo by staying active after taking , since 2004. I dropped my recent reduction from 12.5mg to 10mg this morning and accomplished some work in my garden, meal preps, seedling transplants but it kinds kicked my rear. Now a headache and semi nauseated-weird.
Thanks for sharing

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No side effects I amaware of except rise in
Insulin which is getting better.

REPLY
sharonmc18 | @sharonmc18 | Sep 24 5:09pm
In reply to @oldbtstlshrp2 "Thanks for that input. I am constantly experimenting with splitting doses between A.M. & P.M., different..." + (show)
@oldbtstlshrp2

Thanks for that input. I am constantly experimenting with splitting doses between A.M. & P.M., different time of day for body clock function etc. I am on 12.5mg currently from 15mg last week & before.

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I do the same thing. Trying to get optimal cortisol levels to keep me going during the day. Seems like some days there are other factors where fatigue dips and legs get wobbly. And I am tappering so depending on that schedule…I think everybody experience is different so I think we have to listen to our bodies. Thanks

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