Newest and best long covid recovery treatments?

Posted by lorivwebb @lorivwebb, Sep 10 3:21pm

Has anyone had any substantial or helpful treatment for severe long covid?
Interested to hear any novel therapies being explored. At this point, I am so tired and now have pots and ME with significant symptoms for 2 years.

Looking for some hopeful ideas.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

These articles were beneficial to me. At least understanding it is not just me. See what you all think.

HERE IS ONE:
https://www.npr.org/sections/health-shots/2024/01/09/1223077307/long-covid-exercise-post-exertional-malaise-mitochondria

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@kellysmail2016

Best of luck. Would love to know how it goes. I too have terrible fibromyalgia.
(ME). I also have fatigue that unbelievably. I have to use a walking device and can only go 30 feet or so and have to sit. My heart rate goes high and I can’t breathe but my oxygen doesn’t drop much. I stay about 95-96. The following day I am in bed all day. Sometimes 2 or 2 days depending on how long I stay out. I also have two knees that need to be replaced, spine damages that need surgery and two hips with bursitis. I swell now into my neck. They won’t operate until I loose weight. I have gained 140 lbs from LC damages. I hate this mess.

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I’m so sorry. It does sound like you are going through a lot like me. I hope all of us find relief soon.

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@kellysmail2016

These articles were beneficial to me. At least understanding it is not just me. See what you all think.

HERE IS ONE:
https://www.npr.org/sections/health-shots/2024/01/09/1223077307/long-covid-exercise-post-exertional-malaise-mitochondria

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Thank you for providing us with the link to that article. I had seen it before, and it gave me a much clearer understanding of the basis for LC fatigue. (Specifically, Post-Exertional Malaise, or PEM.)

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@kellysmail2016

I think my breathing is too. Hi, I am Kelly. I’ve been suffering since 2020 but more early 2021. Two bad cases of Covid. Diagnosed Long Covid 2021. My breathing mainly gets bad with short bits of movement which makes my heart rate increase.

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Snap 2 minutes trying to make a cheese sauce from scratch at the stove standing up and I’m doubled up breathing like I’ve down a 4 minute mile! Today was the smallest things that made me feel so useless and old most of the day just visiting family with 5 month old grandchild!

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@wilsonanderson

Snap 2 minutes trying to make a cheese sauce from scratch at the stove standing up and I’m doubled up breathing like I’ve down a 4 minute mile! Today was the smallest things that made me feel so useless and old most of the day just visiting family with 5 month old grandchild!

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I understand. I’m 56 and was extremely active prior. We just moved my mother-in-law to be in a year ago and I can’t even help her like I should, cause I’m worse than she is at 80. I take 17 medications. It’s devastating to say the least. I can see my husband to be is just over waiting on me. He doesn’t understand the true nature of the situation, though he says he does. It is a disability!!! It’s actually like 5 disabilities in 1. I really think someone should be responsible for all who suffer. I still am not sure of the truth of how this nasty infectious disease started???? Would love input on that as well.

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@athenaatkins

I take low-dose naltrexone (current dosage is 2 mg/day), and I have found it to be very effective for the muscle aches and pains that I was having. It certainly isn’t a cure and doesn’t help with my fatigue or post-exertional malaise, but I am better with it than I was without it.

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Hi Athena,

My LC Dr. wanted me to try this and I was reluctant. I read that it was used to treat alcoholism? Also, it had a pretty large co-pay and comes from a specialty drug provider. Co-pay was like $160. Right now I’m fighting SSD and can’t work. I just started Cymbalta. It helps a bit on nuero pain, but like yourself, nothing else.
Kelly

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I've read some research on
7.5 mg nicotine patches worn for seven days for long Covid.
Something about competing for receptor sites.
Worth a shot for sure!

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@kellysmail2016

I understand. I’m 56 and was extremely active prior. We just moved my mother-in-law to be in a year ago and I can’t even help her like I should, cause I’m worse than she is at 80. I take 17 medications. It’s devastating to say the least. I can see my husband to be is just over waiting on me. He doesn’t understand the true nature of the situation, though he says he does. It is a disability!!! It’s actually like 5 disabilities in 1. I really think someone should be responsible for all who suffer. I still am not sure of the truth of how this nasty infectious disease started???? Would love input on that as well.

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I hear you and I certainly have my thoughts on this virus and the crimes against humanity. I’m just trying to focus all of my energy on getting well, but when I do, I’ll be very outspoken on this entire disaster. I cannot believe what has happened to people and how so many are just left to suffer.

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@kellysmail2016

Hi Athena,

My LC Dr. wanted me to try this and I was reluctant. I read that it was used to treat alcoholism? Also, it had a pretty large co-pay and comes from a specialty drug provider. Co-pay was like $160. Right now I’m fighting SSD and can’t work. I just started Cymbalta. It helps a bit on nuero pain, but like yourself, nothing else.
Kelly

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It seems this is the med to try. This and nicotine are what most people seem to say helps them.

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