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Brain fog - ask your doctor about amantadine
Post-COVID Recovery & COVID-19 | Last Active: Oct 20 12:53pm | Replies (28)Comment receiving replies
Thanks for the reply. I really appreciate it, and I'm glad it helped you.
That's kind of odd your neuro said there wasn't any research (but maybe this was earlier on) because they told me they're prescribing it specifically because there's some limited research demonstrating a benefit. I had asked about a case report from Stanford where they used 600 mg NAC (a supplement) and 2 mg guanfacine, which is a non-stimulant medication for ADHD, and the Northwestern team said they wouldn't prescribe that because there's more research supporting use of amantadine.
At any rate, glad it helped you. I'm going to start a clinical trial in November for long COVID brain fog, so maybe after that's over if I don't have a benefit, I'll circle back to them to try the amantadine...
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Keep us posted. They’re good folks at NW
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In reply to @emo @ericy210 @dloos
I started at NWMH LC clinic (in neurology) on 9/11 after a one year wait; LC since 3/23, mostly neurological/fatigue symptoms. I was evaluated (interviewed?) by Dr. Adibnia at length and then Dr. Koralnik popped in (and out). Dr. K. said "try amantadine, it's helped a lot of people," so I picked up the prescription. He said there are over 2000 patients in the LC clinic, so he's probably a bit overworked. After reading Mayo's list of possible side fx of amantadine, I'm quite hesitant to take it, as I too am sensitive to meds. He also recommended that I try the LC support group (Zoom, monthly); I checked into it and spoke with the LCSW who runs it. He sent a link to previous meetings (available on YouTube). They last 1-1/2 hours, and start with various M.D.'s who speak for the first hour; that is followed by a group chat in which the LC clinic patients share viewpoints, and I'll start this week. I'm to follow up my clinic visit in six weeks with a virtual visit with "Asheera": -- and have been trying to make that appointment with no success yet. Other than that, after a year and a half of this stinky thing, and too much time spent researching, crickets.