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Anyone else out there with extremely high lipoprotein (a)?
Heart & Blood Health | Last Active: Dec 5, 2024 | Replies (177)Comment receiving replies
My Lp(a is 559.9 nmol/l.
Yeah, I’m very concerned.😟 Tried to get into a clinical trial but although I had the highest level seen by the Study office, I was not accepted as not had a coronary or vascular episode…yet.
I am being referred to a new cardiology lipid clinic specializing in Lp(a). They are testing and creating a database of people with Lp(a). Not much they can do though for me though as at 78 my cholesterol levels are relatively stable, just on a low dose statin. Normal weight, healthy diet. physically fit. Quit smoking 10 years ago.
I’m looking for another clinical trial until FDA approves an Rx in final testing. Estimated 2-3 years.
Replies to "My Lp(a is 559.9 nmol/l. Yeah, I’m very concerned.😟 Tried to get into a clinical trial..."
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It is scary to find out problems in blood. I don't have elevated LP(a) but have researched it a bit since I have a variety of other lipid things going on. It is so good that you are heading to someone specializing in the area you need, and that you are understanding it is a serious risk factor. And, you're rocking your lifestyle. Yay for you!
I have learned a couple things that I hope are reassuring for you. There are a couple of different measurements used for LP(a) making it important to know which scale to look at. The American Heart Association's webpage says high is 50 mg/dL or 125 nmols/L. My LP(a) is 8 mg/dL and I have a friend who has results of over 1,000 mg/dL.
Also, 20-30% of the population has concerning numbers. I am certainly not trying to encourage you to not take this seriously. It is a serious risk factor and we live in an exciting time that modern medicine understands this and therapies are becoming available to address it. I guess I am just trying to provide a bit of scope to what I have learned. It's a marathon you're entering and not a death sentence.